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TO: NDSC Members and Affiliated Parent Groups
FROM: Susan Goodman, Director, Governmental Affairs
DATE: January 18, 2006
Budget Reconciliation Bill Hurts People with Disabilities
Parts of this Alert were adapted from information from the Disability Policy Collaboration and the Association for University Centers on Disability (AUCD.)
Last month Congress narrowly passed a budget bill (known as the budget reconciliation conference report) which cuts almost $40 billion over the next 5 years from Medicaid, the primary funding program for adults and many children with disabilities.
Ironically, the bill has some good sections. A section introduced by Senators Charles Grassley (R-IA), Evan Bayh (D-IN) and Hillary Clinton (D-NY), with the support of the disability community, including NDSC, would:
- establish a new option for states to provide home- and community-based services (HCBS) without needing to use a waiver process;
- allow states to provide any of the services now covered under HCBS waivers; and,
- require states to establish stricter eligibility (level of care) criteria for institutional services than for community-based services.
However, the good sections are far outweighed by other provisions in the bill which threaten services for EVERY Medicaid beneficiary. This bill includes new state flexibility provisions which would allow states to:
- cap the number of individuals in the Medicaid program. Right now, everyone who is eligible for Medicaid must receive some basic services, such as health care services.
- Impose new cost sharing provisions on individuals that they must pay or not receive a service.
- offer services in limited areas of the state;
- delay state advocacy efforts to move people out of institutions based on the U.S. Supreme Court's decision in Olmstead, which required that waiting lists at least move at a reasonable pace; and
For example, a SSI beneficiary with a developmental disability, living in a group home, could have their entire monthly personal needs allowance depleted by co-pays for Medicaid services (e.g. doctor's visits, prescription drugs, therapy services, wheelchairs). This would make it far more difficult for them to meet their basic needs (e.g. dental care, eyeglasses, hearing aids that Medicaid may not cover, toiletries, and transportation) and virtually impossible to afford any type of leisure activity - like tickets to a movie.
The negative provisions undermine the concept of comprehensive services, at no cost, for individuals with disabilities. In spite of the shortcomings of the current Medicaid program as implemented, the law now requires a certain level of coverage for all who qualify and the best hope for our children to live independent lives in the community.
If the budget reconciliation bill, known as the reconciliation "conference report," passes the House of Representatives, it will be signed into law by President Bush. If the bill is defeated, there will be a chance to have these issues reconsidered.
Action Needed
Contact your Representative and tell him or her to vote NO on the budget reconciliation bill. Below is a chart prepared by the Disability Policy Collaboration with their suggestion about which Representatives to target.
Call or visit your Congressman in his or her district office. If you cannot meet with your Congressman, set up a meeting with his or her Chief of Staff. Congress reconvenes on January 31 and the vote is scheduled for February 1 so time is of the essence. To get contact information about your Representative, go to www.congress.gov and enter your zip code.
ARKANSAS
Boozman
CALIFORNIA
Bono
CONNECTICUT
Johnson
Shays
Simmons
DELAWARE
Castle
FLORIDA
L. Diaz-Balart
Foley
Ros-Lehtinen
Brown-Waite
GEORGIA
Gingrey
IDAHO
Otter
Simpson
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ILLINOIS
Johnson
Shimkus
INDIANA
Buyer
IOWA
Leach
MARYLAND
Gilchrest
MICHIGAN
Ehlers
McCotter
Miller
Schwarz
Upton
MINNESOTA
Ramstad
Gutknect
MISSOURI
Emerson
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MONTANA
Rehberg
NEW JERSEY
Smith
LoBiondo
Saxton
NEW MEXICO
Wilson
NEW YORK
McHugh
Sweeney
Boelhert
Fossella
Kelly
Kuhl
Walsh
NORTH CAROLINA
Jones
Hayes
Coble
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OHIO
LaTourette
Ney
Gillmor
Regula
PENNSYLVANIA
Gerlach
Dent
Pitzpatrick
Platts
Weldon
TEXAS
Paul
VIRGINIA
J.A. Davis
T. Davis
WASHINGTON
Reichert
WEST VIRGINIA
Capito
WISCONSIN
Green
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If you have questions or comments about the Newsline, please contact Susan Goodman at Susang1961@aol.com. |