DENVER/ATLANTA (Nov. 27, 2012) – The Global Down Syndrome Foundation and the National Down Syndrome Congress have announced distribution agreements for the hallmark Down Syndrome Prenatal Testing Pamphlet that provides current, accurate information about Down syndrome to pregnant women and families.
The organizations anticipate distributing 25,000 pamphlets in the next year through the pamphlet’s new corresponding website, www.downsyndrometest.org. In the two weeks since the website launched, more than 1,000 pamphlets have been requested and are in the process of being distributed to several states, including California, Michigan, West Virginia, Texas and Florida. These pamphlets will be delivered free of charge by the end of the year, and distributed to pregnancy centers, OBGYN offices, parent support groups and to participants at an upcoming perinatal conference.
In addition to local distribution accessed through the website, the pamphlet will be distributed nationally by Sequenom Center for Molecular Medicine TM (Sequenom CMM), one of the largest prenatal testing laboratories in the United States. Sequenom CMM will provide medical professionals with the pamphlet, and will recommend that those who administer their test offer the pamphlet to patients / expectant parents at the point of testing and diagnosis. In the next year, Sequenom CMM anticipates providing between 75,000 and 100,000 printed copies of the pamphlet to the medical centers and facilities administering the MaterniT21TM PLUS LDT.
“Sequenom CMM has expressed a desire to better understand the Down syndrome community’s concerns regarding prenatal testing, which opened up a discussion for them to distribute our pamphlet,” said David Tolleson, Executive Director of the National Down Syndrome Congress. “We appreciate their input on our pamphlet, and particularly the acknowledgment in their marketing materials that these tests can help a woman or family to ‘prepare medically, emotionally and financially for the birth of a child with special needs’.”
“It is so important to provide a pamphlet to pregnant women that explains both the prenatal testing associated with Down syndrome and facts about the condition,” said Michelle Sie Whitten, Executive Director of the Global Down Syndrome Foundation. “Requests for local distribution continue to grow through the website, and coupled with Sequenom CMM’s nationwide footprint, we expect to have a real and positive impact on thousands of pregnant women and their families.”
Dan Ketcherside, Director of Market Development at Sequenom CMM agreed, “Sequenom CMM encourages medical professionals to offer accurate information to pregnant women and their families about the conditions tested for through our products. The Global Down Syndrome Foundation and the National Down Syndrome Congress graciously included our perspective on prenatal testing in their pamphlet with messaging that mirrors the dialogue we’re already having with specialists around the country. We are honored to be a partner for this important educational material.”
The Global Down Syndrome Foundation and the National Down Syndrome Congress will continue to monitor advances in prenatal testing. They will also measure the impact of the pamphlet through follow-up surveys and update the pamphlet as appropriate. Sequenom CMM will also contribute to the pamphlet’s utility by surveying medical professionals on a quarterly basis.
The pamphlet format allows for easy updates and distribution. The costs for approved distribution of the pamphlet (printing and shipping) will be incurred by Sequenom CMM, the Global Down Syndrome Foundation and the National Down Syndrome Congress. There is no financial benefit or incentive associated with the distribution agreements.
For free downloads of the pamphlet or to learn more, visit www.downsyndrometest.org.