Emily Artner

The 7th Annual NDSC All Kinds of Heroes Golf Classic

The festivities began Sunday evening at Over The Top Burger Bar at the celebrity meet and greet and pairing party.  A great time was had by everyone who participated in the 2023 NDSC All Kinds of Heroes Golf Classic. 

It was a beautiful day at Bear’s Best Atlanta with a full course.   Many thanks to our celebrity golfers Debbie Antonelli, Tony Barnhart, Chris “Crash” Clark, Corey Crowder, and Richard Kind; and our Grand Marshal Amy Bockerstette, who took time for photos with every team.   

Thank you to all of our sponsors, especially Dr. Noze Best for their Platinum Level Sponsorship and very generous donation. With the support of sponsors and donors, we can continue to provide families with resources and support and promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. 


Petra Mark & Nancy Spanski

May’s National Down Syndrome Advocacy Coalition (NDAC) featured members are 18-year-old Petra Mark and her mom Nancy Spanski of Michigan. Petra is our first self-advocate NDAC member from Michigan! Petra says, “As a person with Down syndrome, I am interested in making the world a better place for people with Down syndrome.” She goes on to say that she felt it was important to join NDAC because she likes speaking up for herself on important issues. She believes is important to be part of NDAC to stay informed. 

Nancy is a long-time member of NDAC. Nancy says, “I was inspired by the collaborative effort of advocates to be effective on a variety of issues. I also appreciate the support and advice when I am working on state and local issues.”   

Petra and Nancy’s advice for beginners is the same. “Don’t be afraid to introduce yourself, believe in what you do and always stand up for yourself. Start where you feel comfortable, which could be an email or phone call to your legislator. “ 

Petra recently had breakfast with her state legislator and invited him to meet with her at the state capitol. She says, “It was good to get to know him, and I plan to keep in touch with him and also meet with my US Representative and Senator.”

Petra, Nancy, brother Ian, and Dad Chris are a farm family. Petra, a decorated 4-H member, shows rabbits, chickens, and goats in 4-H. Petra says one important thing she wants you to know about her is that she is graduating in May with her diploma! 

Petra and Nancy, thank you for your advocacy and sharing your story.

Learn more and/or join the National Down Syndrome Advocacy Coalition here.




Elyssa Schmitz

Elyssa Schmitz, 26 of Denver, Colorado, has two jobs. As a Courtesy Clerk at King Soopers, Elyssa is responsible for engaging with customers, bagging groceries, and gathering carts from the parking lot. Her pet peeve is when people do not place the carts back in the corrals and not just at King Soopers but anywhere! Elyssa works at King Soopers four days a week and has been there for seven years.  

If you meet Elyssa, you will know that her second job as a Happiness Ambassador for Spire is a perfect job because she has a gift for engaging and connecting with people and making them feel valued. She escorts visitors to rooms, brings drinks to visitors, and does data entry. She is included in company outings, gatherings, and holiday parties. Elyssa also invites her co-workers to dances, and recently, four of her Spire coworkers joined her for a Global Down Syndrome Foundation “I Love You” dance party. She works at Spire one day per week and has been there for three and a half years.  

Elyssa likes to spend her money on clothes, coffee, and skin care products! Sometimes she buys mom flowers and dad chocolate!

Elyssa stays busy with her many social and church activities, traveling, and going to the gym. She refers to her living room as her “Country Gril Howdy Ya’ll Cave” and spends her spare time singing. Thank you for sharing your story, Elyssa. 

NDSC E-News ~ April 2023

Heather Hancock 

Our featured NDAC Member, Heather Hancock Blackburn, 39 of Moore, Oklahoma, is a fierce advocate for the inclusion of individuals with Down syndrome. She is very proud of her advocacy work with her local Down syndrome group, the Down Syndrome Association of Central Oklahoma, to make the world a better place for people with Down syndrome. 

Heather is particularly dedicated to advocating for changes to laws that would make it easier for people with Down syndrome to get married to people they love and live their dreams together. 

Heather met Craig Blackburn, of Louisiana, at an NDSC Convention. They became boyfriend and girlfriend. As their relationship grew, they dreamed of being legally married and living together. Unfortunately, outdated laws related to benefits, including laws sometimes known as the “marriage penalty,” have created a system where she and/or Craig would have to forfeit much of their financial assistance to be legally married and live in the same state. She and Craig opted for a commitment ceremony and consider themselves married, but Heather says this is disrespectful and wrong. “I just want to live in my own house, in the same state with my husband Craig.”  

While Heather and Craig hope their dream of living together in the same state comes true soon, she has not allowed that issue or Down syndrome to slow her down. Among her many activities, she is a Special Olympics athlete, an NDSC Self Advocate Council Member, and works two jobs, one at Not Your Average Joe and the other at the Oklahoma Department of Special Education. Craig is also very active, including in his roles on the NDSC Board and as an NDAC member. She and Craig communicate regularly and meet up as often as possible

Heather invites anyone who wants to join her in advocating for people with Down syndrome to join the National Down Syndrome Advocacy Coalition.  

NDSC Capitol Hill Advocacy

National Down Syndrome Congress (NDSC) Executive Director, Jordan Kough joined the NDSC Policy Team including Director of Policy and Advocacy, Cyrus Huncharek, Senior Policy Advisor Stephanie Lee Smith, Grassroots Advocacy Manager Jawanda Mast, and Policy and Advocacy Associate Chapman Bryant, for meetings on Capitol Hill with Congressional offices and key committee staffers to discuss NDSC policy priorities for the Down syndrome community. The NDSC staff was joined by Madeleine Will, former Assistant Secretary of Education for Special Education and Rehabilitative Services and NDSC Policy Council member, and Madison Essig, George Mason University graduate, NDAC member, and self-advocate. 

The group met with several offices in the United States Senate, the United States House of Representatives, and key officials (Valerie Williams, Director, Katherine Neas, Assistant Secretary, and Meghan Whittaker, Special Assistant) with the Department of Education’s Office of Special Education and Rehabilitative Services (OSERS) to advocate on behalf of people with Down syndrome. The meetings included advocating for the Congressional Public Policy Agenda for the 118th Congress. The policy team’s main priorities included employment, education, social security, and eliminating restraint and seclusion. Furthermore, advocating for increased Individuals with Disabilities Education Act (IDEA) funding, eliminating the marriage penalty for people with Down syndrome and other disabilities, and ensuring a higher wage does not correlate to loss of Social Security benefits or Medicaid.  In addition to the main priorities, the policy team asked members of Congress to join the recently registered Congressional Task Force on Down Syndrome in order to build membership to increase Capitol Hill awareness and action on Down syndrome specific issues. 


Noah Bradshaw

Noah Bradshaw, 21 of Elkton, Maryland, works as a busser at Grain Craft Bar and Kitchen and Jimmy John’s, both in Newark, DE. Noah has the typical job duties of wiping down tables, and menus, sweeping, prepping silverware, and refilling empties. Noah uses his earnings to pay rent, for his gym membership, and his Knockout Boxing training with Coach Jon. Noah says,” I just bought myself new headphones. I like to save money more than spend it.” Noah’s favorite thing about his job is spending time with his co-workers and meeting new people.  

Noah is pictured with Kellie Boyce and Kathleen McCormick, both Down Syndrome Association (DSA) of Delaware staff members when they had their staff lunch at Grain Craft Bar. Noah also worked closely with these staffers during his internship at the DSA of Delaware Café.  His internship helped prepare him for the jobs he works in now. Noah has had successful supported employment in his current jobs and when he worked for Starbucks. Thank you for sharing your employment story, Noah.


Marissa Erickson

Ready. Set. Action. Marissa Erickson, 31 of Alameda, California, loves the freedom of making her own schedule, earning competitive wages, and traveling to different film and set locations. Marissa has worked on projects for Apple TV +, Disney +, and several large-scale film productions where she thrives working in craft food services, locking down sets, managing extras, assisting the prop department, equipment set up, and delivering requested items to cast and crew. 

Marissa received a certificate from the Wayfinders’ program at Fresno State and currently attends the Futures Explored Film and Media Studios.  As a freelance production assistant, she has the flexibility to pursue training in the film industry and work at the job she loves. Marissa says, “Being on set is so exciting and my co-workers become family. I love the job perks like travel and food per diems.” Marissa attended the 2022 Emmy Awards with her favorite co-worker, Hannah. Hannah says, “Working with Marissa for Apple TV+ was life changing. She is a dedicated and hard worker who brings so much life and positivity to the set.” 

Marissa’s long-term dream is to work for Disney Studios on a Marvel feature film. Thank you for sharing your employment story, and best wishes on pursuing your Disney dream!