2019 Convention Insider ~ April 17

Pittsburgh Convention Center

Register for Pittsburgh Convention Today!

If you haven’t registered yet, there is still time to take advantage of best value pricing and be part of what some call a “life-changing” experience. Limited space is available in all programs including Youth & Adult, Brothers & Sisters, and Kids’ Camp. Still not sure if the convention is right for you and your family? Check out the amazing workshop schedule or the exclusive specialty tracks we are planning just for you. If you have completed your registration and you want to add a pre-conference session, Evening of Champions tickets, 2019 convention t-shirts, or would like to purchase workshop recordings, call the NDSC office at (800) 232-6372- we will be happy to assist you.

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2019 Convention Insider ~ March 28

Gorgeous and Spacious Omni William Penn Hotel – Still Available

The Omni William Penn Hotel is a premier Pittsburgh hotel and a member of Historic Hotels Worldwide, which is dedicated to promoting heritage and cultural travel to prestigious historic treasures.  Registration for the NDSC 47th Annual Convention just opened this week and many families are excited about being in Pittsburgh this June 27th – 30th for the one-of-a-kind NDSC “giant family reunion” and to discover all that Pittsburgh has to offer.  Recently named one of the “Best Places to Travel”, Pittsburgh offers award-winning restaurants, outstanding family attractions, and a vibrant downtown rich in history.

We are thrilled to have arranged a special rate at the historic Omni William Penn Hotel for convention attendees.  If you have not yet made reservations for your stay in Pittsburgh, you will want to check out the Omni William Penn Hotel and register via the link provided upon completion of your NDSC Convention registration. This historic hotel, just a short 2 block walk from the convention center, has spacious rooms available at the discounted convention rate of $159 per night and a shuttle that will run between the hotel and the convention center during all convention hours.  Book your accommodations soon, as our room block is filling quickly.

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Policy & Advocacy Newsline ~ March 26, 2019

NDSC Senior Policy Advisor, Stephanie Smith Lee, Speaks in Trinidad and Tobago for World Down Syndrome Day Conference

NDSC Senior Policy Advisor, Stephanie Smith Lee, spoke in Trinidad and Tobago last week at the UN World Down Syndrome Day Conference. The conference is hosted in part by one of our NDAC Group members, Down Syndrome Family Network.

Stephanie spoke at the U.S. Embassy in Trinidad and Tobago on WDSD to Embassy staff, the media, and non-profit organizations about policy advocacy to create inclusive schools and the lessons learned in the US about how to create truly inclusive schools.  As a featured speaker, she shared her knowledge of the lessons learned in the U.S. about inclusive education and the key role of family and self-advocates in creating positive change. Listen to one of her speeches HERE.

Employment Policy Update

NDSC continues to prioritize employment policy issues for people with Down syndrome and other disabilities. Much of NDSC’s work on employment policy is with the Collaboration to Promote Self-Determination (more info HERE), a coalition of national groups whose mission is to push for major systemic reform of the nation’s disability laws and programs to advance economic security, enhance integrated community participation, and increase opportunities for people with disabilities so that they are able to lead self-determined lives.

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Boletín ~ Convención

La inscripción para la 47ª Convención Anual

NDSC se abrirá el 25 de marzo

¡Anunciando los talleres de la conferencia

general en español!

La Dieta del Síndrome de Down: Cambiando el ‘Trayecto’ a través de Nutrición, Jennifer Kimes

Descubrá como eliminar y reducir sintomatologia de varios problemas de salud y desarrollo  que afectan a niños y adultos con SD incluyendo autismo, ADD, diabetes, hipotiroidismo y demencia de Alzheimer. Se  presentará una revisión de literatura implicando la dieta alta en azúcar y carbohidratos con muchas de las disfunciones gastrointestinales, neurológicas, endocrinas e imunitarias asociadas con SD. Un syntesis de la investigación hecha sobre las intervenciones dieteticas seran discutidas y se repasaran recomendaciones de varios proveedores de salud para ver como cambiar el trayecto de la disminución  de las perspectivas para las epidemias de salud que afectan a las personas con SD.

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2019 Convention Insider ~ March 11

 Registration Opens on March 25!  Are you Ready?

Important Information Before You Register 

As the opening of registration approaches, we hope that you will take a few minutes to familiarize yourself with the registration system.  We have prepared a video tutorial and a list of registration tips to help you have a great registration experience!

Pre-Conference Sessions

Attending a Pre-Conference session gives you the chance to spend four hours digging deep into one specific topic. The nine session choices, presented by nationally known speakers, are structured to include content that is research-based, shares best practices, and provides proven “how to” strategies. All sessions will include time for Q & A. Pre-Conference sessions require an additional charge during registration.

Pre-Conference Spotlight – Building Bridges: A Holistic Approach to Transition

A multidisciplinary team of experts from the key areas of transition including decision-making, financial planning, employment, independent living, and healthcare will facilitate this workshop. Speakers will also discuss advocating for real opportunities in employment and post-secondary education during IEP meetings and meetings with Vocational Rehabilitation and support services.  We hope this session will provide the audience with guidance on navigating the transition process and developing an individualized plan to adulthood for your adolescent with Down syndrome. 

For detailed information about all of our Pre-conference sessions:

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NDSC E-News ~ March 2019

NDSC’s Mission Moment

with Executive Director David Tolleson 

At the NDSC, serving you and your family is our mission and our privilege.  Since my last “Mission Moment”, we have delivered a Spanish-language workshop for adult siblings in McAllen, Texas; an Educators Conference in Nashville, Tennessee; two free webinars – one on transition by the Children’s Hospital of Philadelphia’s Alyssa Siegel, MD, and another hosted by NDSC staff designed to help prepare attendees for the upcoming registration; and, we attended the Down Syndrome Affiliates in Action Conference in St. Louis, where NDSC Policy Director Heather Sachs provided a policy crash course and where we shared free information and materials with affiliate leaders. This weekend, we’re bringing our latest Down Syndrome Summit to Fort Wayne, Indiana, covering topics including inclusion, advocacy, behavior, health & medical, adult sibling issues, and special needs law.

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2019 Convention Insider ~ March 11

Registration Opens in 2 Weeks! Are you Ready?

NDSC Convention 101: A Road Map to Navigating a Successful Convention Experience

Join us tomorrow, March 12th, at 1:00 p.m. EDT, for a one-hour overview of the NDSC Convention before registration opens March 25th. Learn about the registration system, conference options for the entire family, and social and networking events so that you will be ready to register with confidence!

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Noticias NDSC – Febrero

2do “All Kinds of Heroes” Clásico de Golf Annual

Te invitamos a unirte a nosotros en el 2do “All Kinds of Heroes” Clásico de Golf Anual en el Día Mundial del Síndrome de Down (21 de marzo) en el hermoso Legado en el Campo de Golf Lake Lanier.  Únase a nuestros “HÉROES” (bomberos, oficiales de policía, militares, maestros e individuos con síndrome de Down) en este día especial.

¿No vives en Atlanta? ¡No hay problema!  Una de las mejores partes del día es el “Fire Ball Drop”. Ordene sus “FireBalls” ahora, luego véanos en Facebook Live mientras los lanzamos desde un camión de bomberos. La bola que entra en el hoyo o la más cercana a ella, recibirá un premio en efectivo.

Para jugar en el en el 2do “All Kinds of Heroes” Clásico de Golf Anual  o ordenar tus “Fire Balls”, haga clic aquí

21 frases en 21 dias – ¡Necesitamos tus frases!

Es una tradición de la NDSC. Si una persona con síndrome de Down o usted tiene una frase que le gusta, por favor envíela a Mateo, matthew@ndsccenter.org, antes del 21 de marzo. En el correo electrónico, incluya el nombre, una foto y el lugar donde vive. ¡Podrías ver tu fruse en nuestra página de Facebook!

Convención del NDSC

La inscripción para la 47ª Convención Anual NDSC se abrirá el 25 de marzo

¡Anunciando el taller de pre-conferencia en español!

Por primera vez, tendremos tres ponentes para nuestra pre-conferencia en español. La pre-conferencia que presentaremos en español para la convención del NDSC es Neurodesarrollo, Transición y Comportamiento. Va a ser genial. ¡La inscripción abre el 25 de marzo!

Dra. Macarena Lizama fue reconocida como una de las 100 mujeres líderes de 2018

Nuestro Director del Programa Multicultural viajó a McAllen, Texas, para presentar nuestra “Guía para hermanos mayores” en español. Los hermanos adultos que quieran estar presentes en la vida de su hermano o hermana pero no estén familiarizados con todos los datos relacionados pueden utilizar este manual para hablar con sus padres y saber cómo ser un buen defensor, amigo y, tal vez, cuidador de su hermano cuando sus padres ya no puedan. ¿Interesado en traer esta presentación a su área? Envíe un correo electrónico a Mateo Fernández a matthew@ndsccenter.org

Policy & Advocacy Newsline ~ February 21, 2019

Transformation to Competitive Employment Act

NDSC is proud to be one of the organizations leading the effort to pass the Transformation to Competitive Employment Act (H.R. 873/S.260). Recently introduced in the Senate by Senators Bob Casey (D-PA) and Chris Van Hollen (D-MD) and in the House by Chairman Bobby Scott (D-VA) and Representative Cathy McMorris Rodgers (R-WA), this bipartisan legislation will address barriers to employment and expand opportunities for competitive integrated employment for people with disabilities while phasing out subminimum wage certificates under Section 14(c) of the Fair Labor Standards Act over a six-year period.

While other bills have sought to phase out Section 14(c), this bill is unique in that it also includes a systematic approach to expand capacity for competitive integrated employment, particularly for people transitioning out of sheltered workshops. The grants provided under this bill would provide technical assistance and funding to help states and 14(c) certificate holders move to a paradigm of more integrated and innovative approaches to disability employment.

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