Programs & Resources

COVID-19 and Down syndrome

Misinformation about COVID-19 is reaching infodemic levels, perhaps even more so for people wanting to know how it may affect individuals with Down syndrome. The unprecedented spread of COVID-19 presents the world with a unique challenge and calls for a united response to better understand its impact on the Down syndrome community.

FOR PEOPLE WITH DOWN SYNDROME 18+ WHO HAVE RECEIVED THEIR SECOND DOSE OF THE PFIZER COVID-19 VACCINE:

The COVID-19 & Down Syndrome Resource Consortium supports the CDC’s current guidance that states adults with Down syndrome age 18+ are eligible for a Pfizer COVID-19 booster shot. As adults with Down syndrome are at higher risk for severe illness associated with COVID-19, booster shots should be scheduled as soon as possible six months after their second dose of the Pfizer COVID-19 vaccine.  Recent data shows they are more likely than the general population to experience a “breakthrough” COVID-19 infection and/or experience more severe outcomes during a breakthrough infection. A “breakthrough” COVID-19 infection is defined as someone who gets COVID-19 even though they are vaccinated. Please note that adults with Down syndrome who are older and overweight are at higher risk for severe outcomes. Current CDC guidance does not recommend receiving a Pfizer booster if the individual previously received the Moderna or the Johnson & Johnson vaccine. Booster shots for Moderna and Johnson & Johnson vaccines are not yet available as they are still being evaluated and we will keep you updated as we learn more from the CDC.

UPDATED RESOURCE!  NDSC has again joined forces with other national organizations to update our valuable, free COVID-19 & Down Syndrome Resource for individuals with Down syndrome and their families. This Resource focuses on new and updated information specific to variants, boosters, and school safety.  It also includes notes about testing, vaccines, mental health, ways to stay safe, and advocacy in hospital settings and for appropriate care (released 9/10/2021).

View or Download in English

Are you or a family member nervous about getting the COVID-19 vaccination?  The CDC has prepared a great social story to help visual learners understand the process.

CDC’s Social Story “How I got my COVID-19 shot”

We’ve heard from many people with questions about the COVID-19 vaccines, whether it is recommended for individuals with Down syndrome, and how it will help.  With the help of medical professionals, we’ve garnered answers to your frequently asked questions (updated 08/12/2021).  You can also find the Spanish version here.

FAQs

In addition, we’ve created a plain language infographic to help explain the vaccines, how they work, and more important information (released 2/6/2021).  You can also find the Spanish version here.

Infographic

We’re proud to work with other Down syndrome organizations to provide useful information surrounding COVID-19. We hope you find this Q&A an important resource for individuals with Down syndrome and their families, and we will continue to update these documents (revised 07/30/20). Downloading or printing for individual use is permitted, but posting the document on another website is prohibited.  You are welcome to link to the documents here from your site.  You can also find the Spanish versions here.

Abbreviated Version

Expanded Version

We know that everyone’s routine is turned upside-down and you might need help finding materials or advice.  Whether you are a parent who is now wearing the hat of a teacher, an aspiring advocate who wants to help make change, or perhaps looking for fun free or low-cost & entertaining activities for the whole family, you’ve come to the right place!

The NDSC has gathered and vetted many sources and resources to help our families, and the professionals who serve them, as we all work to flatten the curve.  Knowledge about the virus is developing and changing continuously and we strive to keep bringing you accurate and up-to-date information, so check back often.