Programs & Resources

Local and National Support Networks

Who can I look to for help and support?

The NDSC has connections to a wide-reaching network of local, regional, and national organizations serving people with Down syndrome and their families. Throughout history, this network has supported each other, learning and growing together into a dynamic community. As a member of our community, we offer our in-depth knowledge and support to you.

For parents and family members of individuals with Down syndrome, local organizations play a critical role in offering support, information and resources to the families and individuals with Down syndrome. They offer on-the-ground support to a diverse population in all corners of the United States.

Because these organizations are so valuable, we urge you to search our Affiliate Directory for a local Down syndrome organization closest to you to learn more and become involved.  Organizations shown in gold are current Affiliate Program subscribers.  There are also additional national resources to explore. Please take a look at the organizations that partner with the NDSC on various projects and initiatives each year.

NATIONAL RESOURCES

The Global Down Syndrome Foundation (GDSF)

GDSF is dedicated to significantly improving the lives of people with Down syndrome through research, medical care, education, and advocacy.

3239 E. 2nd Avenue
Denver, CO 80206
Phone: 303-321-6277
Email: info@globaldownsyndrome.org
Website: www.globaldownsyndrome.org

LuMind IDSC Down Syndrome Foundation

LuMind IDSC accelerates research to increase the availability of therapeutic, diagnostic, and medical care options and empowers families through education, connections, and support.

20 Mall Road, Suite 200
Burlington, MA 01803-4126
Phone: 781-825-1300
Email: LuMindIDSC@LuMindIDSC.org
Website: LuMind IDSC

Down Syndrome Affiliates in Action (DSAIA)

DSAIA is a trade organization that works to support and advance the growth and service capabilities of its member local and regional Down syndrome organizations. It serves to be the conduit of value-driven training, programs, best practices, and support for its members.

PO Box 2122
Bismarck, ND 58502
Phone: 701-425-7129
Email: info@dsaia.org
Website: www.dsaia.org

The International Mosaic Down Syndrome Association (IMDSA)

IMDSA provides support, information, and research to any family, individual, or professional whose life has been affected by mosaic Down syndrome.

PO Box 354
Trenton, OH 45067
Phone: 888-MDS-LINK (888-637-5465)
Website: www.imdsa.org

The National Down Syndrome Adoption Network (NDSAN)

NDSAN is a nonprofit program that offers support and information to parents whose child has received a diagnosis of Down syndrome and may be considering an adoption plan. They provide a listening ear and information and keep a registry of families from all over the United States who are interested in adopting a child with Down syndrome within the US. NDSAN is a nonprofit program and charges no fees for its services.

c/o DSAGC
644 Linn Street, Suite 1128
Cincinnati, OH 45203
Birth Parent Line: 513-213-9615
Adoptive Parent Line: 513-709-1751
Website: www.ndsan.org

Down Syndrome Diagnosis Network (DSDN)

Supports parents who have recently received a diagnosis for their child or unborn baby by connecting them to other families touched by Down syndrome. Join one of their many private rockin’ mom ™ and dad online groups for new and expectant parents.

PO Box 140
Stillwater, MN 55082
Phone: (612)460-0765
Email: info@dsdiagnosisnetwork.org
Website: www.dsdiagnosisnetwork.org

The National Down Syndrome Society (NDSS)

NDSS is a national advocate for the value, acceptance and inclusion of people with Down syndrome. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.

666 Broadway
New York, NY 10012
Phone: 800-221-4602
Email: info@ndss.org
Website: www.ndss.org

ALABAMA

Down Syndrome Alabama
Birmingham, AL
Phone: 205-988-0810
Email: downsyndromealabama@gmail.com
Website: www.downsyndromealabama.org

FRIENDS
Dothan, AL
Phone: 334-726-2075
Email: hadkins5@gmail.com
Website: www.DownSyndromeFRIENDS

Coastal Alabama Down Syndrome Society
Mobile, AL
Phone: 251-342-3122
Email: downsyndromesociety@gmail.com
Website: www.dssmobile.org

Bringing Up Down Syndrome BUDS
Madison, AL
Phone: 214-729-6606
Email: BUDS@budsonline
Website: www.budsonline.org

Montgomery Area Down Syndrome Outreach Group
Montgomery, AL
Email: montgomeryareadownsyndrome@gmail.com
Website: www.montgomeryareadownsyndrome.com

The Arc of Shelby County
Pelham, AL
Phone:205-664-9313
Email:kstokes@thearcofshelby.org
Website:www.thearcofshelby.org

Miracle Mullen Downs Foundation
Birmingham, Alabama
Phone:205-283-4015
Email:mmdownsfoundation@yahoo.com
Website:www.facebook.com/MiracleMullenDownsFoundation

ALASKA

Alaska Down Syndrome Network
Anchorage, AK
Phone: 907-667-6677
Website: www.akdownsyndrome.org

ARIZONA

Sharing Down Syndrome Arizona! Inc
Gilbert, AZ
Phone: 480-926-6500
Email: gina@sharingds.org
Website: www.sharingds.org

Down Syndrome Network AZ
Phoenix, AZ
Phone: 480-759-9150
Email: info@dsnetworkaz.org
Website: www.dsnetworkaz.org

Southern Arizona Network for Down Syndrome
Tucson, AZ
Phone: 520-477-2637
Email: info@sandsaz.org
Website: www.sandsaz.org

Leti Foundation
Tempe, AZ
Phone:480-567-6148
Email:tgpalma@icloud.com
Website:www.letifoundation.com

ARKANSAS

Arkansas Down Syndrome Association
Little Rock, AR
Phone: 501-223-3696
Email: contact@ardownsyndrome.org
Website: www.ardownsyndrome.org

Down Syndrome Connection of Northwest Arkansas
Springdale, AR
Phone:479-644-9208
Email: jennifermcwhorter@dscnwa.com
Website: www.dscnwa.com

Disability Rights Arkansas
Little Rock, AR
Phone:501-269-1775
Email:info@disabilityrightsar.org
Website:www.disabilityrightsar.org

Arkansas Down Syndrome Network
Little Rock, AR
Email:ardsnetwork@gmail.com
Website:https://www.facebook.com/groups/1056050221178935

CALIFORNIA

Down Syndrome Association of Orange County
Costa Mesa, CA
Phone: 714-540-5794
Email: info@dsaoc.org
Website: www.dsaoc.org

Down Syndrome Connection of the Bay Area
Danville, CA
Phone: 925-362-8660
Email: dscba@dsconnection.org
Website: www.dsconnection.org

Club 21
Pasadena, CA
Phone: 626-844-1821
Email: info@clubtwentyone.org
Website: www.clubtwentyone.org

Down Syndrome Information Alliance
Sacramento, CA
Phone: 916-658-1686
Email: info@downsyndromeinfo.org
Website: www.downsyndromeinfo.org

Down Syndrome Association North Bay
Santa Rosa, CA
Phone: 707-537-8001
Email: dihobaugh@sbcglobal.net
Website: www.dsanb.org

Down Syndrome Association of Central California
Fresno, CA
Phone: 559-228-0411
Email: om@dsacc.org
Website: www.dsacc.org

Inland Valley Down Syndrome Association
Rancho Cucamonga, CA
Phone: 833-483-7221
Email: info@ivdsa.org
Website: www.ivdsa.org

Tulips and Triumphs
Newbury Park, CA
Email: jjmcjloper@verizon.net

Down Syndrome Foundation of Orange County
Newport Beach, CA
Phone: 949-757-1177
Email: info@dsfoc.org
Website: www.dsfoc.org

Down Syndrome Association of San Diego
San Diego, CA
Phone: 619-594-7389
Website: www.dsasdonline.org

DS Action
San Diego, CA
Phone: 619-694-4615
Email: sharla.hank@dsaction.com
Website: www.dsaction.com

Silicon Valley Down Syndrome Network
San Jose, CA
Phone: 408-771-4796
Email: info@svdsn.com
Website: www.svdsn.org

Down Syndrome Special Needs Network
Santa Maria, CA
Phone: 805-937-9458
Email: hofflouise@aol.com

The Arc Solano /Solano Parents United for Down Syndrome
Vallejo, CA
Phone: 707-552-2935
Email: arcgforcier@email.com
Website: www.thearcsolano.org

Down Syndrome Association of Los Angeles
Van Nuys, CA
Phone: 818-786-0001
Email: info@dsala.org
Website: www.dsala.org

BUDS of the Redwoods
Eureka, CA
Email:NCBWalk@gmail.com
Website:www.budsoftheredwoods.com

Parents Helping Parents 
San Jose, CA
Phone:408-727-5775
Email:info@php.com
Website:www.php.com

Kern Down Syndrome Network
Bakersfield, CA
Phone:661-234-8006
Email:info@kerndsn.org
Website:www.kerndsn.org

Special Parents Information Network (SPIN)
Santa Cruz, CA
Phone:831-722-2800
Email:info@spinsc.org
Website:www.spinsc.org

California Down Syndrome Advocacy Coalition 
Email:cadsadvocacy@gmail.com
Website:https://cdacblog.wordpress.com/

COLORADO

Colorado Springs Down Syndrome Association
Colorado Springs, CO
Phone: 719-633-1133
Email: info@csdsa.org
Website: www.csdsa.org

Rocky Mountain Down Syndrome Association
Denver, CO
Phone: 303-797-1699
Email: info@rmdsa.org
Website: www.rmdsa.org

CONNECTICUT

Down Syndrome Association of Connecticut
New Britain, CT
Phone: 888-486-8537
Email: info@mydsact.org
Website: www.mydsact.org

Lighthouse Voc-Ed Center
New London, CT
Phone:860-445-7626
Email:info@ihcampus.com
Website:lhcampus.com

DELAWARE

Down Syndrome Association of Delaware
Middletown, DE
Phone: 302-995-1004
Website: www.dsadelaware.org

FLORIDA

Gold Coast Down Syndrome Organization
Boynton Beach, FL
Phone: 561-752-3383
Email: gcdso@bellsouth.net
Website: www.Goldcoastdownsyndrome.org

Down Syndrome Association of Jacksonville
Jacksonville, FL
Phone: 904-353-6300
Email: dsaj@bellsouth.net
Website: www.dsaj.org

Down Syndrome Association of Central Florida
Orlando, FL
Phone: 407-478-5621
Email: info@dsacf.org
Website: www.dsacf.org

Fun Coast Down Syndrome Association
Palm Coast, FL
Phone: 386-447-8034
Email: funcoastdown@bellsouth.net
Website: www.funcoastdownsyndrome.com

21 & Change, Inc.
Riverview, FL
Phone: 910-273-7049
Email: info@21andchange.org
Website: www.21andchange.org

Manasota BUDS
Bradenton, FL
Phone: 941-907-0499
Email: info@manasotabuds.org
Website: www.manasotabuds.org

F.R.I.E.N.D.S. Support
Brandon, FL
Phone: 813-245-2782
Email: info@friendssupport.org
Website: www.friendssupport.org

Treasure Coast Down Syndrome Awareness Group
Hobe Sound, FL
Phone: 772-546-7057
Email: sacs01@bellsouth.net
Website: www.tcdownsyndromeag.org

Down Syndrome Foundation of Florida
Orlando, FL
Email: info@dsfflorida.org
Website: www.dsfflorida.org

F.E.D.S. of Brevard
Merritt Island, FL
Email: info@fedsofbrevard.org
Website: www.fedsofbrevard.org

Broward Gold Coast Down Syndrome Organization
Sunrise, FL
Phone: 954-577-4122
Email: ddebraga@bgcdownsyndrome.org
Website: www.bgcdownsyndrome.org

Down Syndrome Association of Miami
Miami, Flordia
Phone:305-218-8233
Email:info@dsaom.org

Down Syndrome Association of Northwest Flordia
Tallahassee, FL
Phone:850-476-3724
Email:momsunshine03@bellsouth.net

Down Syndrome Association of Tallahassee
Tallahassee, FL
Phone:850-298-8187 ext.74370
Email:excutivedirector@dstallahassee.com
Website:www.dsatallahassee.com

Down Syndrome Foundation of Flordia
Orlando, FL
Phone:407-484-4273
Email:info@dsfflordia.org
Website:www.dsfflordia.org

Families Exploring Down Syndrome- Brevard
Cocoa Beach, FL
Phone:321-480-4796
Email:info@fedsofbrevard.org
Website:www.fedsofbrevard.org

Flordia Keys Down Syndrome Educational Trust
Key Largo, FL
Phone:305-942-3967
Email:contactus@fkdset.org
Website:www.fkdset.org

GEORGIA

Down Syndrome Association of Atlanta
Atlanta, GA
Phone: 404-320-3233
Email: info@dsaatl.org
Website: www.dsaatl.org

Down Syndrome Association of South Georgia
Valdosta, GA
Phone:229-300-0050
Email:info@southgeorgiadsa.org
Website:southgeorgiadsa.blogspot.com

Lowcountry Down Syndrome Society
Savannah, GA
Phone:912-436-3626
Email:info@ldssga.org
Website:www.ldssga.org

Middle Georgia Down Syndrome Society
Macon, GA
Phone:478-994-1436
Email:middlegaddss@gmail.com
Website:www.ds-stride.org/middlegeorgiabuddywalk

Upside of Downs
Augusta, GA
Phone: 706-799-5347
Email: kkstrite@gmail.com

Down Syndrome West Georgia Inc.
Franklin, GA
Email:downsyndromewestga@gmail.com
Website:www.facebook.com/pg/Downsyndromewetgabuddywalk

HAWAII

Down Syndrome ‘Ohana of Hawaii
Honolulu, HI
Phone: 808-843-2502
Email: ds_ohana@yahoo.com
Website: www.dsohawaii.com

IDAHO

Down Syndrome Connections NW
Hayden, ID
Phone: 208-755-5079
Email: info@dsconnections.com
Website: www.dsconnections.com

Treasure Valley Down Syndrome Association
Meridian, ID
Phone: 208-378-9912
Email: president@idahodownsyndrome.org
Website: www.idahodownsyndrome.org

Eastern Idaho Down Syndrome Family Connect
Rigby, ID
Phone:208-716-6504
Email:info@easternidahodownsyndrome.org
Website:www.easternidahodownsyndrome.org

Southeast Idaho Down Syndrome Support Group
Boise, ID
Phone:208-317-6211
Website:www.seidahobuddywalk.com

ILLINOIS

Gigi’s Playhouse
Hoffman Estates, IL
Phone: 847-885-7529
Email: jenni@gigisplayhouse.org
Website: www.gigisplayhouse.org

Heart of Illinois Down Syndrome Association
Morton, IL
Phone: 309-712-4852
Email: info@hoidsa.org
Website: www.hoidsa.org

Central IL Down Syndrome Organization
Normal, IL
Phone: 309-452-3264
Website: www.cidso.org

Champaign County Down Syndrome Network
Champaign, IL
Phone: 217-351-4163
Email: info@champaigndsn.org
Website: www.champaigndsn.org

Livingston Area Down Syndrome Society
Chatsworth, IL
Phone: 815-689-2202
Email: info@ladss.org

Riverbend Down Syndrome Association
Glen Carbon, IL
Phone: 618-667-8771
Email: secretary@riverbendds.org
Website: www.riverbendds.org

UPS for DownS
Schaumburg, IL
Phone: 847-895-2100
Email: info@upsfordowns.org
Website: www.upsfordowns.org

Lincoln Land Down Syndrome Society
Springfield, IL
Phone: 217-741-1832
Email: jason.schnepp@gmail.com
Website: www.lldss.org

NADS
Wilmette, IL
Phone: 630-325-9112
Email: info@nads.org
Website: www.nads.org

Celebrate Differences
Oswego, IL
Phone:630-885-3006
Email:info@celebratedifferences.org
Website:www.celerbratedifferences.org

Down Syndrome Support
New Lenox, IL
Phone:815-272-1068
Email:info@dssupport.net
Website:www.dssupport.net

Family Ideas Network for Down Syndrome
Crystal Lake, IL
Phone:815-575-9864
Email:onepercent2@gmail.com
Website:www.findsdownsyndrome.com

Kankakee Area Down Syndrome Soceity 
Chicago, IL
Phone:815-210-8944
Email:info@kadss.org

INDIANA

Down Syndrome Indiana
Indianapolis, IN
Phone: 317-925-7617
Email: info@dsindiana.org
Website: www.dsindiana.org

Down Syndrome Association of Northeast Indiana
Ft. Wayne, IN
Phone: 260-471-9964
Email: dsani4u@aol.com
Website: www.dsani.org

Down Syndrome Family Connection
Bloomington, IN
Phone: 812-339-2012
Email: Cyndi@downsyndromefamilyconnection.org
Website: www.downsyndromefamilyconnection.org

Down Syndrome Association of Central Indiana
Carmel, IN
Phone: 317-574-9757
Email: MKaye62801@aol.com

Elkhart Co. Down Syndrome Support Group
Goshen, IN
Phone: 574-534-3931
Email: ecdssg@mac.com
Website: www.ecdssg.org

Michiana Down Syndrome
Granger, IN
Phone: 574-334-7734
Email: info@michianadownsyndrome.org
Website: www.michianadownsyndrome.org

Down Syndrome Association of Northwest Indiana
Highland, IN
Email: dsa@dsaofnwi.org
Website: www.dsaofnwi.org

Dads Appreciating Down Syndrome (D.A.D.S.)
Indianapolis, IN
Phone: 317-523-5888
Website: www.dadsnational.org

SMILE on Down Syndrome
Newburgh, IN
Phone: 812-925-6839
Email: nina@smileondownsyndrome.org
Website: www.smileondownsyndrome.org

Chasing Dreams
Merrillville, IN
Phone:219-299-9049
Website:www.chasingdreams.org

Columbus Area Down Syndrome Support Group
Columbus, IN
Phone:812-375-9594
Website:www.cadssg.org

Down Syndrome Northwest Indiana & Chicagoland
Highland, IN
Phone:219-838-3656
Email:dsa@dsaofnwi.org
Website:www.dsaofnwi.org

IOWA

Northwest Iowa Down Syndrome Society
Spencer, IA
Phone: 712-580-6671
Website: www.nwiadownsyndromesociety.org

Hawkeye Area Down Syndrome Association
Cedar Rapids, IA
Email: eharlan@hadsa.org
Website: www.hadsa.org

Tri-State Down Syndrome Network
Sioux Center, IA
Phone: 712-722-2142
Email: tristatedsnetwork@gmail.com

Designer Genes Down Syndrome Group
Waterloo, IA
Email: designergenes2005@yahoo.com

Down Syndrome Assocation of North Central Iowa
Mason, City, IA
Phone:704-491-6503
Email:dsanorthcentraliowa@gmail.com
Website: www.dsa-nci.com

Up with Downs/ Down Syndrome Family Support Group
Des Monies, IA
Phone:515-243-6685
Email:Laurie@upwithdown.org
Website:www.upwithdown.org

KANSAS

Down Syndrome Guild of Greater Kansas City
Mission, KS
Phone: 913-384-4848
Email: info@kcdsg.org
Website: www.kcdsg.org

Down Syndrome Society of Wichita
Wichita, KS
Phone: 316-977-9339
Email: info@dsswichita.org
Website: www.dsswichita.org

Southeast Kansas Down Syndrome Society
Chanute, KS
Phone:620-431-0470
Email:info@sekdss.com

Down Syndrome Guild Of Greater Kansas City
Mission, KS
Email:info@kcdsg.org
Website:www.kcdsg.org

KENTUCKY

Down Syndrome Association of Central Kentucky
Lexington, KY
Phone: 859-494-7809
Email: dsack.org@gmail.com
Website: www.dsack.org

Down Syndrome of Louisville, Inc.
Louisville, KY
Phone: 502-495-5088
Email: dianam@downsyndromeoflouisville.org
Website: www.downsyndromeoflouisville.org

Down Syndrome of South Central Kentucky
Bowling Green, KY
Phone: 270-796-5002
Email: info@dssky.org
Website: www.dssky.org

Green River Area Down Syndrome Association
Owensboro, KY
Phone: 270-925-0195
Email: info@gradsa.org
Website: www.gradsa.org

Stewart Home School
Frankfort, KY
Phone:502-227-4821
Email:info@stewarthome.com
Website: www.stewarthome.com

Ups-n-Downs of Western Kentucky
Paducah, KY
Phone:270-444-9687
Email:upsndowns@dsawk.com
Website:www.dsawk.com 

LOUISIANA

Down Syndrome Association of Acadiana
Lafayette, LA
Phone: 337-234-3109
Email: dsaa@dsaa.info
Website: www.dsaa.info

Down Syndrome Association of Greater New Orleans
New Orleans, LA
Phone: 504-259-6201
Email: info@dsagno.org
Website: www.dsagno.org

Upside down, Inc.
Thibodaux, LA
Phone: 985-447-8188
Email: info@upside-downs.org
Website: www.upside-downs.org

Down Syndrome Awareness Group
Baton Rouge, LA
Website: www.dsagbr.org

Up with Downs
Shreveport, LA
Phone: 318-797-8575
Email: upwithdowns318@gmail.com
Website: www.upwithdowns.org

Families Helping Families of Southwest Louisana
Baton Rouge, LA
Phone:337-436-2570
Email:info@fhfswla.org
Website:www.fhfswla.org

Up4Downs of Southwest Louisana
Lake Charles, LA
Phone:337-582-6138
Email:dseaux@up4downswla.org
Website:www.up4downswla.org

MAINE

Maine Down Syndrome Network
Windham, ME
Phone: 866-571-2223
Email: info@dsmaine.org
Website: www.dsmaine.org

MARYLAND

Chesapeake Down Syndrome Parent Group, Inc.
Baltimore, MD
Phone: 410-321-5434
Email: info@cdspg.org
Website: www.cdspg.org

Down Syndrome Network of Montgomery County (DSNMC)
Rockville, MD
Phone: 301-979-1112
Email: admin@dsnmc.org
Website: www.dsnmc.org

Anne Arundel County Down Syndrome Connection
Arnold, MD
Phone: 888-279-2279
Email: t21connection@yahoo.com
Website: www.downsyndromeconnection.com

F.R.I.E.N.D.S
Middletown, MD
Phone: 301-371-7047
Email: friendsoffredco@gmail.com
Website: www.friendsoffredco.org

Parents of Children with Down Syndrome of Prince George’s County
Fort Washington, MD
Phone:301-925-7050
Email:podsofpgc@gmail.com
Website:www.podsopgc.org

Down Syndrome Association of Southern Maryland
Hughesville, MD
Phone:240-461-4361
Email:info@dsasmd.org
Website:https://www.dsasmd.org

MASSACHUSETTS

Massachusetts Down Syndrome Congress
Burlington, MA
Phone: 800-664-6372
Email: mdsc@mdsc.org
Website: www.mdsc.org

Berkshire County ARC Down Syndrome Family Group
Pittsfield, MA
Phone: 413-499-4241
Email: mtiffany@bcarc.org
Website: www.bcarc.org/programs/dsfg

Down Syndrome Resource Group of Western MA
Springfield, MA
Phone: 800-536-2910, 413-794-8342
Email: info@dssupport.org
Website: www.dssupport.org

Down Syndrome Resources Group of Western MA
Springfield, MA
Phone:413-794-8342
Email:info@dssupport.org
Website:www.dssupport.org

MICHIGAN

Graceland Farms Foundation
Nunica, MI
Phone: 517-648-1114
Email: jen@gracelandfarmsfoundation.org
Website: www.gracelandfarmsfoundation.org

Down Syndrome Association of West Michigan
Grand Rapids, MI
Phone: 616-956-3488
Email: info@dsawm.org
Website: www.dsawm.org

St. Clair County Down Syndrome Support Group
Fair Haven, MI
Phone: 810-367-2045
Email: kellydinardo@comcast.net

Capital Area Down Syndrome Association
Lansing, MI
Phone: 517-333-6655
Email: info@cadsa.org
Website: www.cadsa.org

Upper Peninsula Down Syndrome Association
Marquette, MI
Phone: 906-250-0963
Email: UPDownsyndrome@gmail.com

Down Syndrome Guild of Southeast Michigan
Royal Oak, MI
Phone: 248-556-5341
Email: info@dsgsemi.org
Website: www.dsgsemi.org

Families Exploring Down Syndrome
Sterling Heights, MI
Phone: 586-997-7607
Email:fedsofmichigan@gmail.com
Website: www.familiesexploringdownsyndrome.org

Down Syndrome Association of Northwest Michigan
Traverse City, MI

Phone:(231) 357-8383
Email:dsupnorth@gmail.com
Website:https://www.dsupnorth.org

MINNESOTA

Down Syndrome Association of Minnesota
St. Paul, MN
Phone: 651-603-0720
Email: dsamn@dsamn.org
Website: www.dsamn.org

MISSISSIPPI

Northeast Mississippi Down Syndrome Society
Saltillo, MS
Email: nemdss@bellsouth.net
Website: NEMDSS

Gulf Coast Down Syndrome Society 
Gautier, MS
Phone:228-447-0270
Email:info@gcdss.org
Website:www.gcdss.org

MISSOURI

Down Syndrome Association of Greater St. Louis, Inc.
St. Louis, MO
Phone: 314-961-2504
Email: info@dsagsl.org
Website: www.dsagsl.org

Down Country
Taylor, MO
Phone: 217-617-3568
Email: info@upatdowncountry.com
Website: www.upatdowncountry.com

Down Syndrome Group of the Ozarks
Springfield, MO
Phone: 417-885-9905
Email: info@ozarksdsg.org
Website: www.ozarksdsg.org

MONTANA

Montana Down Syndrome Association
Missoula, MT
email: Philip@mtdsa.org
website: www.mtdsa.org

DREAM (Down syndrome Research Education and Advocacy of Montana)
Whitefish, MT
Phone:406-599-2556
Email:dreambuddywalk@gmail.com
Website:www.dream-mt.org

Family Outreach (Region IV)
Helena, MT
Phone:406-443-3083
Email:smarisdotter@familyoutreach.org
Website:www.myfamilyoutreach.org

Yellowstone County Extra Special Kids
Billings, MT
Phone:406-256-0469
Email:christina0469@msn.come

NEBRASKA

Down Syndrome Association for Families of Nebraska
Lincoln, NE
Phone: 402-206-3092
Email: director@dsafnebraska.org
Website: www.dsafnebraska.org

Down Syndrome Advocates in Action Nebraska
Lincoln, NE
Phone: 402-413-0199
Email: dsaaofne@gmail.com
Website: www.dsaane.org

Down Syndrome Alliance of the Midlands
Omaha, NE
Phone: 402-991-1800
Email: info@dsamidlands.org
Website: www.dsamidlands.org

Little Leaf Learning Center
Omaha, NE
Phone:402-515-7234
Email:president@friendsofdownsyndrome.org

NEVADA

Down Syndrome Organization of Southern Nevada
Las Vegas, NV
Phone: 702-648-1990
Email: ceo@dsosn.org
Website: www.dsosn.org

Down Syndrome Network of Northern Nevada
Reno, NV
Phone: 775-828-5159
Email: dsnnninfo@gmail.com
Website: www.dsnnn.org

Pahrump Disability Outreach Program 
Pahrump, NV
Phone:702-516-0847
Email:dsnnninfo@gmail.com
Website:www.dsnnn.org

NEW HAMPSHIRE

New Hampshire Down Syndrome Association
Londonderry, NH
Phone: 603-479-1589
Email: info@newhampshiredsa.org
Website: www.nnedsc.org

NEW JERSEY

BUDS “Bringing Up Down Syndrome”
Voorhees, NJ
Phone: 856-985-5885
Email: information@bringingupdownsyndrome.org
Website: www.bringingupdownsyndrome

KIIDS
Bellmawr, NJ
Phone: 609-471-7445
Email: contact@kiids.info
Website: www.kiids.info

Jersey Shore Down Syndrome Association
Brick, NJ
Phone: 732-255-5737
Website: www.jsdsa.org

Network 21
E. Brunswick, NJ
Phone: 908-309-1588
Email: mjrobertson510@gmail.com
Website: www.dsnetwork21.com

Down Syndrome Association of Central New Jersey
Ewing, NJ
Phone: 866-369-6796
Email: dsacnj@arcmercer.org

21 Down – A Down Syndrome Awareness Group
Northfield, NJ
Phone: 609-625-8141
Email: info@21down.org
Website: www.21down.org

Central New Jersey Down Syndrome Parent Advocacy Group
North Plainfield, NJ
Phone:908-756-6774
Email:dsparentgroupnj@gmail.com
Website:www.dsparentgroup.org

Down Syndrome Support Group of Family Resources Associates  
Red Bank, NJ
Phone:732-747-5310
Email:info@frainc.org
Website:www.frainc.org

NEW MEXICO

Down Syndrome Foundation of Southeastern New Mexico
Roswell, NM
Phone: 575-622-1099
Email: info@dsfsenm.org
Website: www.dsfsenm.org

Rio Grande Down Syndrome Network
Albuquerque, NM
Phone: 505-382-5061; 505-382-5067
Email: info@rgdsn.org
Website: www.rgdsn.org

Southern New Mexico Down Syndrome Families 
Phone:575-993-4817
Email:snmdsf@gmail.com
Website:snmdsf.org

NEW YORK

Trisomy 21 Foundation of Northern NY
Black River, NY
Phone:315-788-0869
Email:tri21nny@yahoo.com
Website:downsyndromesupportnny.org

Down Syndrome Parent Support Group of Genesee County
Oakfield, NY
Email: dspsg1@gmail.com
Website: www.downsyndromegenesee.org

Down Syndrome Aim High Resource Center, Inc.
Albany, NY
Phone: 518-738-0020 x 3726
Email: modasra@cfdsny.org
Website: www.dsahrc.org

Down Syndrome Association of the Hudson Valley
Gardiner, NY
Phone: 845-226-1630
Email: info@dsahv.org
Website: www.dsahv.org

Arc of Westchester
Hawthorne, NY
Phone: 914-949-9300
Email: info@westchesterarc.org
Website: www.arcwestchesterarc.org

Down Syndrome Info Network of the Twin Tiers
Horseheads, NY
Phone: 607-734-6151
Email: carc@stny.rr.com
Website: www.downsyndromeintt.org

Down Syndrome Connection of Long Island
Huntington, NY
Phone: 631-427-4395
Email: info@dscli.org
Website: www.dscli.org

Alexander’s Angels
Jericho, NY
Phone: 516-361-7263
Email: alexandersangels@gmail.com
Website: www.alexandersangels.org

Flower City Down Syndrome Network
Rochester, NY
Phone: 585-568-7421
Email: info@fcdsn.com
Website: www.fcdsn.com

Southern Tier Down Syndrome Information Network
Southern Tier, NY
Phone: 607-621-5514
Email: dsin.stny@yahoo.com

Down Syndrome Parent Group of Western New York
Tonawanda, NY
Phone: 716-832-9334
Email: dspgwny@hotmail.com
Website: www.dspgwny.org

Down Syndrome Network of Northern New York
Watertown, NY
Phone: 315-788-0869
Website: www.downsyndromesupportnny.org

Kennedy-Willis Center on Down Syndrome
Edmeston, NY
Phone:607-965-8655
Email:info@pathfindervillage.org

Mohawk Valley Down Syndrome Support and Awareness Group
Utica, NY
Phone:315-738-0794
Email:info@upstatecp.org
Website:upstatecp.org/mohawk-valley-down-syndrome-awareness-group

GiGi’s Playhouse (New York City)
New York, NY
Phone:646-801-7529
Email:nyc@gigisplayhouse.org
Website:gigisplayhouse.org/newyork

GiGi’s Playhouse (Westchester) 
Ardsley, NY
Phone:914-479-5566
Email:westchester@gigisplayhouse.org
Website:gigisplayhouse.org/westchester/

NORTH CAROLINA

Triangle Down Syndrome Network
Raleigh, NC
Phone: 919-788-3646
Email: info@tdsn.org
Website: www.tdsn.org

Down Syndrome Network of Onslow & Carteret Counties
Jacksonville, NC
Phone: 910-719-3321
Email: president@dsnocc.org
Website: www.dsnocc.org

Down Syndrome Association of Greater Charlotte
Charlotte, NC
Phone: 704-536-2163
Email: info@dsa-gc.org
Website: www.dsagreatercharlotte.org

Down Syndrome Network of Greater Greensboro
Greensboro, NC
Phone: 336-832-6507
Email: nickelhodges@yahoo.com
Website: www.dsngg.org

Cumberland County NC Down Syndrome Association
Lillington, NC 27546
Phone: 910- 922-5024
Email: ccncdsa@gmail.com

Western North Carolina Down Syndrome Alliance
Asheville, NC
Phone:828-707-3753
Email:alicemillerdsa@charter.net
Website:wncdsa.org

Down Syndrome Association of Greater Winston-Salem
Winston-Salem, NC
Phone: 336-739-DOWN (3696)
Email: info@dsagws.org
Website: www.dsagws.org

North Carolina Down Syndrome Alliance
Raleigh, NC
Phone:984-200-1193
Email:info@ncdsalliance.org
Website:www.ncdsalliance.org

NORTH DAKOTA

Designer Genes of North Dakota
Bismarck, ND
Email: info@designergenesnd.com
Website: www.designergenesnd.com

BUDS of Greater Grand
Greater Grand, ND
Email:buds.news@gmail.com
Website:www.facebook.com/pg/budsggf

GiGi’s Playhouse Fargo
Fargo, North Dakota
Phone:701-551-7529
Email:fargo@gigisplayhouse.org
Website:gigisplayhouse.org/fargo/

OHIO

Down Syndrome Association of Greater Cincinnati
Cincinnati, OH
Phone: 513-761-5400
Website: www.dsagc.com

Down Syndrome Association of Central Ohio
Columbus, OH
Phone: 614-263-6020
Email: dsaco@dsaco.net
Website: www.dsaco.net

Miami Valley Down Syndrome Association
Dayton, OH
Phone: 937-222-0744
Email: office@mvdsa.org
Website: www.mvdsa.org

The Up Side of Downs of Northeast Ohio
Independence, OH
Phone: 216-447-8763
Email: info@usod.org
Website: www.usod.org

Down Syndrome Association of Greater Toledo
Sylvania, OH
Phone: 419-536-4321
Email: information@dsagt.org
Website: www.dsagt.org

Specs4US
Burton, OH
Phone:1-800-586-1885
Email:info@specs4us.com
Website:www.puttingdownsfirst.org

The Down Syndrome Association of the Valley
Boardman, OH
Phone: 330-726-3728
Email: info@dsav.org
Website: www.dsav.org

The Ups of Downs
Wellsville, OH
Phone: 330-532-3684
Email: info@theupsofdowns.org
Website: www.theupsofdowns.org

OKLAHOMA

Down Syndrome Association of Central Oklahoma
Oklahoma City, OK
Phone: 405-463-5641
Email: executivedirector@dsaco.org
Website: www.dsaco.org

Down Syndrome Association of Tulsa, Inc.
Tulsa, OK
Phone: 918-804-3728
Email: info@dsat.org
Website: www.dsat.org

OREGON

Down Syndrome Association of Southern Oregon
Ashland, OR
Phone: 541-776-9805
Email: mail@dsaso.org
Website: www.dsaso.org

Down Syndrome Connections Northwest
Hayden, OR
Phone: 208-755-5079
Email: info@downsyndromeconnections.com
Website: www.dsconnectionsnw.org

Down Syndrome Connection of Central Oregon
Bend, OR
Phone:541-213-8656
Website:dscco.org

Willamette Valley Down Syndrome Association
Salem, OR
Phone:503-796-7403
Email: info@wvdsa.org
Website:www.wvdsa.org

PENNSYLVANIA

Delaware County Down Syndrome Interest Group
Springfield, PA
Phone: 610-544-4025
Email: DELCODSIG@yahoo.com

Down Syndrome Group of Erie County
Erie, PA
Phone: 814-833-2143
Email: downsynerie@yahoo.com
Website: www.downsyndromeerie.org

Chester Co. Down Syndrome Interest Group
Exton, PA
Phone: 610-889-0291
Email: info@ccdsig.org
Website: www.ccdsig.org

Down Syndrome Association of Pittsburgh
Gibsonia, PA
Email: admin@dsapgh.org
Website: www.dsapgh.org

Bucks County Down Syndrome Interest Group
Kintnersville, PA
Phone: 215-766-0890
Email: dgsantoro@gmail.com
Website: www.bcdsig.org

Lancaster Down Syndrome Advocates
Lancaster, PA
Phone: 717 478-8537
Email: contact@lancasterdsa.or
Website: www.lancasterdsa.org

T21 Club of the Delaware Valley
Philadelphia, PA
Phone: 215-990-8730
Email: t21club@verizon.net
Website: www.t21clubofthedelawarevalley.org

Montgomery County Down Syndrome Interest Group of PA
Blue Bell, PA
Phone: 484-808-2160
Email: info@mcdsig.org
Website: www.mcdsig.org

Centre County Down Syndrome Society
State College, PA
Phone: 814-235-1981
Email: ccdssociety@gmail.com
Website: www.centrecountydownsyndrome.org

Eastern Pennsylvania Down Syndrome Center
Trexlertown, PA
Phone: 610-402-0184
Website: www.epdsc.net

Central PA Down Syndrome Awareness Group
Carlisle, PA
Phone:717-218-0242
Email:info@cpadsa.org
Website:www.cpadsag.org

Hopes and Dreams Foundation
Southampton, PA
Phone:215-264-2859
Email:info@hopesanddreamsfoundation.org
Website:www.hopesanddreamsfoundation.org

PUERTO RICO

Mis Amigos De Sindrome de Down, Inc.
Carolina, PR
Phone: 787-791-3249
Email: yolanda@masdpr.net
Website: www.masdpr.net

Madres Innovadoras de Personas con sindrome de Down
Las Piedras, PR
Phone: 787-312-5574
Email: madresinnovadoras@gmail.com
Website: www.madresinnovadoras.blogspot.com

Fundación Puertorriqueña Síndrome Down
San Juan, PR
Phone: 787-283-8210
Email: fpsd@coqui.net
Website: www.sindromedown.org

RHODE ISLAND

Down Syndrome Society of Rhode Island
Cranston, RI
Phone: 401-463-5751
Email: coordinator@dssri.org
Website: www.dssri.org

SOUTH CAROLINA

Upside of Downs of Aiken
Aiken, SC
Email: info@aikenupsidedowns.org
Website: www.aikenupsidedowns.org

Family Connections
Columbia, SC
Phone: 822-578-8750
Email: info@familyconnectionsc.org

Down Syndrome Family Alliance
Greenville, SC
Phone: 864-884-5062

Down Syndrome Association of Lowcountry
Mt. Pleasant, SC
Phone: 843-553-3725
Email: dsalowcountry@gmail.com
Website: www.dsalowcountry.org

The Grand Strand Down Syndrome Society
Myrtle Beach, SC
Phone: 843-283-0890
Email: grandstranddss@hotmail.com
Website: www.grandstrandds.org

Down Syndrome Association of the Upstate
Greenville, SC
Phone:864-990-5549
Email:info@dsaupstate.org
Website:www.dsaotu

SOUTH DAKOTA

New Directions Down Syndrome Association
Sioux Falls, SD
Phone: 605-610-8026
Email: info@newdirectionsdsa.com
Website: www.newdirectionsdsa.com

TENNESSEE

Chattanooga Down Syndrome Society
Chattanooga, TN
Email: chattanoogadownsyndromesociety@gmail.com
Website: www.chattanoogadownsyndrome.org

Down Syndrome Awareness Group of East Tennessee
Knoxville, TN
Phone: 865-202-8867
Email: info@dsagtn.org
Website: www.dsagtn.org

Down Syndrome Association of Memphis and the Mid-South
Memphis, TN
Phone: 901-547-7588
Email: director@dsamemphis.org
Website: www.dsamemphis.org

Down Syndrome Association of Middle Tennessee
Nashville, TN
Phone: 615-386-9002
Email: alecia@somethingextra.org
Website: www.somethingextra.org

F.R.I.E.N.D.S.
Johnson City, TN
Phone: 423-946-3734
Email: admin@dsfriends.net
Website: www.dsfriends.net

TEXAS

Panhandle Down Syndrome Guild
Amarillo, TX
Email: panhandledsg@yahoo.com
Website: www.panhandledsg.net

Down Syndrome Association of Central Texas
Austin, TX
Phone: 512-323-0808
Email: info@dsact.com
Website: www.dsact.com

Down Syndrome Association of Brazos Valley
College Station, TX
Phone: 979-778-7010
Email: dsabv@yahoo.com
Website: www.dsabv.org

Down Syndrome Coalition for El Paso (DSCEP)
El Paso, TX
Phone: 915-241-1040
Email: info@dscep.org
Website: www.dscep.org

Down Syndrome Partnership of North Texas
Fort Worth, TX
Phone: 817-390-2970
Email: info@dspnt.org
Website: www.dspnt.org

Friends of Down Syndrome
Houston, TX
Phone: 281-989-0345
Email: president@friendsofdownsyndrome.org
Website: www.friendsofdownsyndrome.org

East Texas Down Syndrome Group
Longview, TX
Phone: 903-757-3516
Email: etdsgdirector@gmail.com
Website: www.etdsg.org

Down Syndrome Guild of Dallas
Richardson, TX
Phone: 214-267-1374
Email: dsged@sbcglobal.net
Website: www.downsyndromedallas.org

Down By the Border
Brownsville, TX
Phone: 956-544-7727
Email: sergio@downbytheborder.com
Website: www.downbytheborder.org

Rio Grande Valley Down Syndrome Association
Edinburg, TX
Phone: 956-314-0821
Email: info@rgvdsa.org
Website: www.rgvdsa.org

Down Syndrome Association of Houston
Houston, TX
Phone: 713-682-7237
Email: executivedirector@dsah.org
Website: www.dsah.org

BUDS – Better Understanding of Down Syndrome
Lubbock, TX
Email: llowe@budsonline.net

Red River Valley Down Syndrome Society
Paris, TX
Phone: 903-783-1922
Email: info@rrvdss.org
Website: www.redriverdss.org

Down Syndrome Association of South Texas
San Antonio, TX
Phone: 210-349-4372
Email: tmauldin@dsastx.org
Website: www.dsastx.org

Greater-Houston Families exploring Down Syndrome
Houston, TX
Phone:281-736-8008
Email:admin@ghfeds.org
Website:www.ghfeds.org

Heart of Texas Down Syndrome Network
Waco, TX
Phone:254-230-9782
Email:support@hotdsn.org
Website:www.hotdsn.org

UTAH

Utah Down Syndrome Foundation
Salt Lake City, UT
Phone: 801-446-1994
Email: info@udsf.org
Website: www.udsf.org

VERMONT

Champlain Valley Down Syndrome Group
Burlington, VT
Phone: 802-658-7802
Email: info@cvdsg.org
Website: www.cvdsg.org

VIRGINIA

Down Syndrome Association of Northern Virginia
Falls Church, VA
Phone: 703-621-7129
Website: www.dsanv.org

Down Syndrome Association of Greater Richmond
Richmond, VA
Phone: 804-796-5141
Email: dsagrinfo@yahoo.com
Website: www.dsagr.org

Down Syndrome Association of Hampton Roads
Norfolk, VA
Phone: 757-466-3696
Email: office@dsahr.org
Website: www.dsahr.org

Down Syndrome Association of Virginia Peninsula
Yorktown, VA
Phone: 757-890-3013
Email: dsavp21@yahoo.com

WASHINGTON

Down Syndrome Community
Seattle, WA
Phone: 206-431-9777
Email: info@downsyndromecommunity.org
Website: www.downsyndromecommunity.org

Down Syndrome of Snohomish County
Snohomish County, WA
Phone: 425-263-1039
Email: info@dsasc.org
Website: www.dsasc.org

WEST VIRGINIA

Down Syndrome Network of West Virginia
Cross Lanes, WV
Phone: 304-545-6133
Email: dsnwvinfo@gmail.com
Website: www.dsnwv.org

WISCONSIN

Madison Area Down Syndrome Society
Madison, WI
Phone: 608-692-7653
Email: info@madss.org
Website: www.madss.org

Down Syndrome Association of Wisconsin – Fox Cities
Appleton, WI
Phone: 920-418-5533
Email: info@dsawfoxcities.org
Website: www.dsawfoxcities.org

Wisconsin Upside Down
Hartland, WI
Phone: 262-443-8690
Email: info@wiusd.org
Website: www.wiusd.org

Down Syndrome Association of Wisconsin, Inc.
Milwaukee, WI
Phone: 414-327-3729
Email: info@dsaw.org
Website: www.dsaw.org

Down Syndrome Association of Wisconsin-Green Bay
Green Bay, WI
Phone:920-703-8784
Email:infogreenbay@dsaw.org

Down Syndrome Association of Wisconsin-Chippewa 
West Allis, WI
Phone:715-379-0563
Email:info@dsawchippewavalley.org
Website:www.dsawchippewavalley.org

WYOMING

Wyoming Down Syndrome Association
Laramie, WY
Phone: 307-742-6641
Website: www.wydsa.org

AUSTRALIA

Down Syndrome NSW
New South Wales, Australia
Email: library@dsansw.org.au

NIGERIA

Down Syndrome Foundation of Nigeria
Lagos, Nigeria
Phone: 234-803-228-5545
Website: www.dsanigeria.org

ONTARIO, CANADA

Down Syndrome Association of Toronto
Toronto Ontario, ON
Phone: 416-966-0990
Email: info@dsat.ca
Website: www.dsat.ca

TRINIDAD AND TOBAGO

Down Syndrome Family Network
Valsayn, Trinidad, and Tobago
Phone: 868-663-0865
Email: dsfamilynetwork@gmail.com
Website: www.dsfamilynetwork.org