Local and National Support Networks
Who can I look to for help and support?
The NDSC has connections to a wide-reaching network of local, regional and national organizations serving people with Down syndrome and their families. Throughout history, this network has supported each other, learning and growing together into a dynamic community. As a member of our community, we offer our in-depth knowledge and support to you.
For parents and family members of individuals with Down syndrome, local organizations play a critical role in offering support, information and resources to the families and individuals with Down syndrome. They offer on-the-ground support to a diverse population in all corners of the United States.
Because these organizations are so valuable, we urge you to search our Affiliate Directory for a local Down syndrome organization closest to you to learn more and become involved.
There are also additional national resources to explore. Please take a look at the organizations that partner with the NDSC on various projects and initiatives each year.
Down Syndrome Affiliates in Action (DSAIA)
is a trade organization which works to support and advance the growth and service capabilities of its member local and regional Down syndrome organizations. It serves to be the conduit of value-driven training, programs, best practices and support for its members.
PO Box 2122
Bismarck, ND 58502
The Global Down Syndrome Foundation (GDSF)
is dedicated to significantly improving the lives of people with Down syndrome through research, medical care, education and advocacy.
3300 East First Ave. Suite 390
Denver, CO 80206
The International Down Syndrome Coalition (IDSC)
is a valuable partner in the quest to ensure that women have access to free, accurate information about Down syndrome so they can provide truly informed consent when considering pregnancy-related screenings and diagnostic tests.
The International Mosaic Down Syndrome Association (IMDSA)
provides support, information and research to any family, individual or professional whose life has been affected by mosaic Down syndrome.
PO Box 354
Trenton, OH 45067
The National Down Syndrome Adoption Network (NDSAN)
is a nonprofit program that offers support and information to parents whose child has received a diagnosis of Down syndrome and may be considering an adoption plan. They offer a listening ear and information and keep a registry of families from all over the United States who are interested in adopting a child with Down syndrome within the US. NDSAN is a nonprofit program and charges no fees for their services.
644 Linn Street, Suite 1128
Cincinnati, OH 45203
Birth Parent Line: 513-213-9615
Adoptive Parent Line: 513-709-1751
Down Syndrome Diagnosis Network (DSDN)
supports parents who have recently received a diagnosis for their child or unborn baby by connecting them to other families touched by Down syndrome. Join one of their many private rockin’ mom ™ and dad online groups for new and expectant parents.
PO Box 140
Stillwater, MN 55082
The National Down Syndrome Society (NDSS)
is a national advocate for the value, acceptance and inclusion of people with Down syndrome. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.
666 Broadway, New York, NY 10012
*Down Syndrome Alabama
*Alaska Down Syndrome Network
Tulips and Triumphs
Newbury Park, CA
Down Syndrome Association of San Diego
San Diego, CA
Down Syndrome Special Needs Network
Santa Maria, CA
*Down Syndrome Association of Delaware
Upside of Downs
*Central IL Down Syndrome Organization
Down Syndrome Association of Central Indiana
Dads Appreciating Down Syndrome (D.A.D.S.)
Tri-State Down Syndrome Network
Sioux Center, IA
*Northwest Iowa Down Syndrome Society
Designer Genes Down Syndrome Group
Down Syndrome of South Central Kentucky
Bowling Green, KY
Down Syndrome Awareness Group
Baton Rouge, LA
Berkshire County ARC Down Syndrome Family Group
Phone: 413-499-4241 265
St. Clair County Down Syndrome Support Group
Fair Haven, MI
Upper Peninsula Down Syndrome Association
Montana Down Syndrome Association
Jersey Shore Down Syndrome Association
*BUDS “Bringing Up Down Syndrome”
Cherry Hill, NJ
Southern Tier Down Syndrome Information Network
Southern Tier, NY
*Trisomy 21 Foundation of Northern NY
Cumberland County NC Down Syndrome Association
Lillington, NC 27546
Phone: 910- 922-5024
Down Syndrome Group of Erie County
Down Syndrome Association of Pittsburgh
*Delaware County Down Syndrome Interest Group
Eastern Pennsylvania Down Syndrome Center
Mis Amigos De Sindrome de Down, Inc.
*Down Syndrome Family Alliance
Down By the Border
BUDS – Better Understanding of Down Syndrome
Down Syndrome Association of Northern Virginia
Falls Church, VA
*Down Syndrome Network of West Virginia
Cross Lanes, WV
Wyoming Down Syndrome Association
Down Syndrome Foundation of Nigeria
Down Syndrome Family Network
Valsayn, Trinidad and Tobago