Local and National Support Networks
Who can I look to for help and support?
The NDSC has connections to a wide-reaching network of local, regional and national organizations serving people with Down syndrome and their families. Throughout history, this network has supported each other, learning and growing together into a dynamic community. As a member of our community, we offer our in-depth knowledge and support to you.
For parents and family members of individuals with Down syndrome, local organizations play a critical role in offering support, information and resources to the families and individuals with Down syndrome. They offer on-the-ground support to a diverse population in all corners of the United States.
Because these organizations are so valuable, we urge you to search our Affiliate Directory for a local Down syndrome organization closest to you to learn more and become involved.
There are also additional national resources to explore. Please take a look at the organizations that partner with the NDSC on various projects and initiatives each year.
Down Syndrome Affiliates in Action (DSAIA)
DSAIA is a trade organization which works to support and advance the growth and service capabilities of its member local and regional Down syndrome organizations. It serves to be the conduit of value-driven training, programs, best practices and support for its members.
The Global Down Syndrome Foundation (GDSF)
GDSF is dedicated to significantly improving the lives of people with Down syndrome through research, medical care, education and advocacy.
The International Mosaic Down Syndrome Association (IMDSA)
IMDSA provides support, information and research to any family, individual or professional whose life has been affected by mosaic Down syndrome.
PO Box 354
Trenton, OH 45067
Phone: 888-MDS-LINK (888-637-5465)
The National Down Syndrome Adoption Network (NDSAN)
NDSAN is a nonprofit program that offers support and information to parents whose child has received a diagnosis of Down syndrome and may be considering an adoption plan. They offer a listening ear and information and keep a registry of families from all over the United States who are interested in adopting a child with Down syndrome within the US. NDSAN is a nonprofit program and charges no fees for their services.
644 Linn Street, Suite 1128
Cincinnati, OH 45203
Birth Parent Line: 513-213-9615
Adoptive Parent Line: 513-709-1751
Down Syndrome Diagnosis Network (DSDN)
supports parents who have recently received a diagnosis for their child or unborn baby by connecting them to other families touched by Down syndrome. Join one of their many private rockin’ mom ™ and dad online groups for new and expectant parents.
LuMind IDSC Down Syndrome Foundation
LuMind IDSC accelerates research to increase availability of therapeutic, diagnostic, and medical care options and empowers families through education, connections, and support.
The National Down Syndrome Society (NDSS)
NDSS is a national advocate for the value, acceptance and inclusion of people with Down syndrome. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.
*Alaska Down Syndrome Network
Tulips and Triumphs
Newbury Park, CA
Down Syndrome Association of San Diego
San Diego, CA
Down Syndrome Special Needs Network
Santa Maria, CA
*Down Syndrome Association of Delaware
Upside of Downs
Livingston Area Down Syndrome Society
*Central IL Down Syndrome Organization
Down Syndrome Association of Central Indiana
Dads Appreciating Down Syndrome (D.A.D.S.)
Tri-State Down Syndrome Network
Sioux Center, IA
*Northwest Iowa Down Syndrome Society
Designer Genes Down Syndrome Group
Down Syndrome Awareness Group
Baton Rouge, LA
St. Clair County Down Syndrome Support Group
Fair Haven, MI
Upper Peninsula Down Syndrome Association
Jersey Shore Down Syndrome Association
Down Syndrome Association of Central New Jersey
Southern Tier Down Syndrome Information Network
Southern Tier, NY
*Down Syndrome Network of Northern New York
Cumberland County NC Down Syndrome Association
Lillington, NC 27546
Phone: 910- 922-5024
*Down Syndrome Association of Greater Cincinnati
*Delaware County Down Syndrome Interest Group
Eastern Pennsylvania Down Syndrome Center
*Down Syndrome Family Alliance
BUDS – Better Understanding of Down Syndrome
Down Syndrome Association of Northern Virginia
Falls Church, VA
Down Syndrome Association of Virginia Peninsula
Wyoming Down Syndrome Association
Down Syndrome NSW
New South Wales, Australia
Down Syndrome Foundation of Nigeria