Parent Webinar Series
Join Us for our Upcoming Webinars
Each year, thousands of people from across the globe attend the NDSC Annual Convention. For most, it’s to hear the latest information from world-renowned experts. For others, it’s a great vacation. However, for nearly all, there’s the one-of-a-kind NDSC “giant family reunion” feeling that permeates the convention weekend. Join NDSC staff members to learn about this year’s 4-day event, which will be held in New Orleans, June 25-28, 2020.
Presented by David Tolleson – Executive Director, Sarah Hill – Convention Director, and Tamara Pursley – Programs & Partnerships Director, this session will give you an overview of all things convention and an opportunity to ask questions.
Can’t make the webinar? No problem, register for the event and you will receive a link to view the recording. All webinar recordings should be available within one week of a live broadcast.
Access recordings from past webinars
Tues, Dec 10, 2019 – Supported Decision Making
View Recording on Supported Decision Making
Supported Decision-Making (SDM) is a way for people with disabilities to make their own decisions, by using family members, friends, professionals, and other people they trust to help understand the issues and choices being faced. In this webinar, the presenter will discuss what SDM means in practical, everyday terms; why SDM is important in the lives of people with disabilities; and how SDM can be used to promote self-determination. She will also share updates on ways in which SDM is being advanced on the local, state, and federal levels across the United States.
Join NDSC Policy & Advocacy Director Heather Sachs and Autism Society Vice President of Public Policy Kim Musheno, along with an experienced grassroots advocacy self-advocate, as they discuss the basics of advocacy, why it is important to become engaged, and what steps you can take to help NDSC and Autism Society achieve their policy goals to improve the lives of individuals with Down syndrome, autism, and other disabilities.
People with Down syndrome may have a decline in skills for a variety of reasons. Much of the focus has been on Alzheimer’s disease but there are many causes, most of which are potentially reversible. A thorough evaluation, with particular emphasis on conditions that are more common in people with Down syndrome is essential. Treatment of these conditions will often lead to an improvement in symptoms. Presented by Dr. Brian Chicoine.
What does the science say? What are the benefits of knowing? Will this impact services for my child?
These questions and more are answered during a webinar presented with our friends from the Autism Society of America.
March 12, 2019 – Convention 101
NDSC Staff members provide an overview of the NDSC Convention. Learn about conference options for the entire family, social and networking events on-site, and how the registration system works.
March 7, 2019 – Transitioning to Adulthood Without Falling off a Cliff
In this webinar, Dr. Alyssa Siegel, Medical Director of the Children’s Hospital of Philadelphia’s Transition to Adulthood Comprehensive Care, will address the common challenges that families face during this exciting but daunting time. In conversation with Stephanie Pratico, family-centered care educator and advocate, and parent of two young adults with Down syndrome, this experienced team will delineate planning strategies and solutions that will allow families to fly rather than fall as they approach the transition to adulthood.
January 17, 2019 – How Your Nonprofit Organization Can – and Why it Should – Engage in Grassroots Advocacy
View recording on Member Engagement
The NDSC & DSAIA a co-hosted webinar regarding how to keep your membership informed and engaged in policy issues, build relationships with elected officials, and serve as the voice of the local Down syndrome community to promote policy change.
The NDSC’s knowledgeable Policy & Advocacy Team provide an inside look at the issues, what’s at stake, and how you can talk to the candidates.
May 24, 2018 – Communicating Your Vision: Using The Future to Find Your Now
View recording on Communicating Your Vision
Presented by Kristin Enriquez, founder of Sevi’s Smile. This webinar explores the importance of creating a Vision for your child. Potential starting points and supports for the development of this Vision will be discussed. Emphasis on how to communicate this Vision effectively with your child’s Educational Team, in order to build capacity for increasing experiences of access and opportunity for people with Down syndrome, including the use of a Digital Portfolio.
In this webinar, Bryn Gelaro, AM, LSW, Director of Adult Initiatives and Special Projects for the Global Down Syndrome Foundation, addresses the crucial role behavior and mental health play in the overall health of adults with Down syndrome. Behavior and mental health are intricately connected to physical health, but this can be overlooked, misinterpreted or not looked at in the context of the complete health care picture for adults with Down syndrome.
Presented by Terri Couwenhoven, MS, the clinic coordinator and health educator for the Down Syndrome Clinic at Children’s Hospital of Wisconsin, this webinar will give you the opportunity to “Ask the Expert” your questions about puberty, sexuality, and relationships for teens and adults with Down syndrome and developmental disabilities.
January 31, 2018 – Adopting a Child with Down syndrome
View recording on Adoption
Presented by Stephanie Thompson, Director, this webinar will introduce families to the National Down Syndrome Adoption network and provide information and resources to families who are interested in adopting a child who has Down syndrome within the United States (also known as “domestic adoption”). The adoption process will be explained, from how to obtain a home study to the finalization process.
November 29, 2017 – Accommodations & Modifications
View recording on Accommodations & Modifications
Presentation Slides on Accommodations & Modifications
Presented by Julie Harmon, Inclusion Coordinator at University of Colorado Colorado Springs (and NDSC Board member). This webinar explores how the use of accommodations and modifications can be a key to meaningful participation in the general education classroom for students with disabilities.
Sam Towers, M.Ed., owner of Towers Behavior Services, LLC is a behavior analyst who has spent 25 years providing services to individuals with disabilities who exhibit problem behavior. In addition, he has served as a special educator and has trained special education teachers at the University of Kentucky. In addition, Towers authored the chapter “Addressing Problem Behaviors in Individuals with DS-ASD” in the book “When Down Syndrome and Autism Intersect”.
September 14 – ABLE Accounts: People with Down Syndrome are Finally #ABLEtoSave for the Future!
Heather Sachs (1st session) – View recording on ABLE Accounts
Chris Rodriguez (2nd session) –View recording on ABLE Accounts
Chris Rodriguez and Heather Sachs from the ABLE National Resource Center walk participants through a primer on ABLE accounts and how to use them, including what they are and who can qualify for one; what the rules are regarding eligibility, distributions, and account limits; how to open an ABLE account and manage the funds; how the funds in ABLE accounts may be used; and which states are offering ABLE accounts and how these ABLE programs differ.
August 29, 2017 – Include Me! Including Young Children in Early Childhood Programs –
View recording on Inclusion
Presented by Gerin Martin, Ed.D, this webinar is for parents of children with developmental disabilities, aged 2-5. Inclusion, at any level, is an art in partnerships. Learn what high-quality inclusion in an early childhood classroom should look like and how to partner with the early childhood professionals working with your child, in order to carry over skills at home.