Center for Outreach & Education

Parent Webinars

How Your Nonprofit Organization Can – and Why it Should – Engage in Grassroots Advocacy

Many non-profit leaders shy away from advocacy efforts for fear that they will jeopardize their organization’s 501(c)(3) tax-exempt status by being “too political”. Join the NDSC & DSAIA for a co-hosted webinar, during which, you will learn how to keep your membership informed and engaged in policy issues, build relationships with elected officials, and serve as the voice of the local Down syndrome community to promote policy change. Co-hosted by NDSC Advocacy Director, Heather Sachs, and NDSC Policy and Advocacy Associate, Lauren Camp, with DSAIA, this webinar will discuss NDSC’s National Down Syndrome Advocacy Coalition (NDAC) and other resources you can use to get your group connected and educate members about policy issues.

Save the Date
Thursday, January 17, 2019
1:00 PM – 2:30 PM (EST)


Can’t make the webinar?  No problem, register for the event and you will receive a link to view the recording. (All webinar recordings should be available within one week of a live broadcast).

Archived Webinars

Tuesday, October 16, 2018 – Why You Should Care About the Midterm Elections
The NDSC’s knowledgeable Policy & Advocacy Team provide an inside look at the issues, what’s at stake, and how you can talk to the candidates.
View Recording
Download slides

May 24, 2018 – Communicating Your Vision: Using The Future to Find Your Now
View recording here

Presented by Kristin Enriquez, founder of Sevi’s Smile.  This webinar explores the importance of creating a Vision for your child.  Potential starting points and supports for the development of this Vision will be discussed. Emphasis on how to communicate this Vision effectively with your child’s Educational Team, in order to build capacity for increasing experiences of access and opportunity for people with Down syndrome, including the use of a Digital Portfolio.

April 26, 2018 – Behavior and Mental Health: The Missing Piece in the Wellness Puzzle for Adults with Down syndrome
View recording here
Download slides here

In this webinar, Bryn Gelaro, AM, LSW, Director of Adult Initiatives and Special Projects for the Global Down Syndrome Foundation, addresses the crucial role behavior and mental health play in the overall health of adults with Down syndrome. Behavior and mental health are intricately connected to physical health, but this can be overlooked, misinterpreted or not looked at in the context of the complete health care picture for adults with Down syndrome.

March 27, 2018 – NDSC Convention 101
View recording here
Convention Webinar PPT
CH-FrequentlyAskedQuestions

Would you like to learn about all things NDSC Convention?  Presented by NDSC staff members, we cover what the experience is all about, how to register, and what to do when you get there.

February 22, 2018 – Ask the Expert – Puberty, Sexuality & Relationships
View recording here
Dating FAQ’s
Puberty, Sexuality & Relationships Resource Sheet
Adult Down Syndrome Center resources discussed on the webinar

Presented by Terri Couwenhoven, MS, the clinic coordinator and health educator for the Down Syndrome Clinic at Children’s Hospital of Wisconsin, this webinar will give you the opportunity to “Ask the Expert” your questions about puberty, sexuality, and relationships for teens and adults with Down syndrome and developmental disabilities.

January 31, 2018 – Adopting a Child with Down syndrome
View recording here

Presented by Stephanie Thompson, Director, this webinar will introduce families to the National Down Syndrome Adoption network and provide information and resources to families who are interested in adopting a child who has Down syndrome within the United States (also known as “domestic adoption”). The adoption process will be explained, from how to obtain a home study to the finalization process.

November 29, 2017 – Accommodations & Modifications
View recording here
Presentation Slides
Other resources

Presented by Julie Harmon, Inclusion Coordinator at University of Colorado Colorado Springs (and NDSC Board member).  This webinar explores how the use of accommodations and modifications can be a key to meaningful participation in the general education classroom for students with disabilities.

October 26, 2017 – Improving Behaviors
View recording here
Download handouts here

Sam Towers, M.Ed., owner of Towers Behavior Services, LLC is a behavior analyst who has spent 25 years providing services to individuals with disabilities who exhibit problem behavior. In addition, he has served as a special educator and has trained special education teachers at the University of Kentucky. In addition, Towers authored the chapter “Addressing Problem Behaviors in Individuals with DS-ASD” in the book “When Down Syndrome and Autism Intersect”.

September 21, 2017 – Pediatric Care – Ask the Doctor!
Register here ($20) to view recording

Presented by Kishore Vellody, MD, Associate Professor of Pediatrics, Children’s Hospital of Pittsburgh.  The answers to the questions will be intended for a general audience and are not intended to provide specific diagnoses or definitive treatments for your loved one with Down syndrome. Please seek specific medical advice from your doctor and medical team for specific guidance.

September 14 – ABLE Accounts: People with Down Syndrome are Finally #ABLEtoSave for the Future!
Heather Sachs (1st session) – View recording here
Chris Rodriguez (2nd session) –View recording here

Chris Rodriguez and Heather Sachs from the ABLE National Resource Center walk participants through a primer on ABLE accounts and how to use them, including what they are and who can qualify for one; what the rules are regarding eligibility, distributions, and account limits; how to open an ABLE account and manage the funds; how the funds in ABLE accounts may be used; and which states are offering ABLE accounts and how these ABLE programs differ.

August 29, 2017 – Include Me! Including Young Children in Early Childhood Programs –
View recording here

Presented by Gerin Martin, Ed.D, this webinar is for parents of children with developmental disabilities, aged 2-5. Inclusion, at any level, is an art in partnerships. Learn what high-quality inclusion in an early childhood classroom should look like and how to partner with the early childhood professionals working with your child, in order to carry over skills at home.