Programs & Resources

Family Care Toolkit

The FAMILY CARE TOOLKIT created by the NDSC, with the support of the Global Down Syndrome Foundation, is a toolkit created for the caregiver. Emergencies happen. Vacations and respite are sometimes needed. It is essential to have important information in one place when a caregiver comes in to care for a person with Down syndrome, as well as other members of the family. The Parent guide shows you how to complete the toolkit. The rest of the toolkit is divided into 6 sections – Home, Family, Daily Living, Medical, Resources, and Emergency- which includes everything from how to use remotes to emergency medical consent forms.

Download the documents below, or contact us at to purchase a toolkit and binder for just $25. One book per family, please.

Parent Guide

Family Care Toolkit content