Programs & Resources

Health Care & Medical Resources

In our lifetime, the single most dramatic change effected by our community has been the astounding improvement of the health of people with Down syndrome. Through the caring innovation of medical professionals, the typical lifespan of an individual with Down syndrome now approaches 60 years of age, the average for all people. Equally important, advancements in cardiology, nutrition, the behavioral sciences, and more have opened a high quality of life for people with Down syndrome.

Some communities are fortunate to have Down syndrome clinics or programs nearby.  To find the one nearest you, visit our clinic listing page.

Pediatric Healthcare Guidelines & Growth Charts
GLOBAL Medical Care Guidelines for Adults

The GLOBAL Medical Care Guidelines for Adults with Down Syndrome provide first-of-its-kind, evidence-based medical recommendations to support clinicians in their care of adults with Down syndrome. This life-changing resource as published in JAMA covers 9 topic areas deemed critically important for the health and well-being of adults with Down syndrome and outlines critical future research needs.

NDSC is proud to be a key supporter of GLOBAL’s work to bring these to clinicians and families.  When you visit the GLOBAL webpage you can download the full guidelines, the guidelines toolkit (a great checklist to take to your appointments), and read more about the authors & workgroup.

Find the guidelines here


The National Task Group on Intellectual Disabilities and Dementia Practices

The NTG is a not-for-profit organization charged with ensuring that the interests of adults with intellectual and developmental disabilities who are affected by Alzheimer’s disease and other causes of dementia – as well as their families and friends are taken into account.