News & Events

NDSC Statement on Discriminatory Medical Treatment Rationing During COVID-19 Crisis

The National Down Syndrome Congress (NDSC), the country’s oldest national organization serving people with Down syndrome, their families, and the professionals who work with them. NDSC advocates for all people with Down syndrome to be treated equally and works to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome. We realize that during this COVID-19 public health crisis that the need for intensive medical care may exceed the capacity and resources of our healthcare system. We also recognize that medical providers may be forced to make decisions regarding who should receive care and how much care an individual will receive.

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Announcement of 2020 Convention Cancellation

After careful consideration, and in response to guidance from the World Health Organization (WHO) and the Centers for Disease Control and Prevention (CDC), the NDSC Board of Directors and staff have made the difficult decision to cancel the 48th  Annual NDSC Convention, scheduled June 25-28, 2020, at the Hyatt Regency New Orleans, due to risks associated with COVID-19.

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NDSC Special WDSD Edition E-News

Mission Moment

With NDSC Executive Director, David Tolleson

 This World Down Syndrome Day dawns on a changed planet. Who would’ve guessed – even just a few weeks ago – that we would find ourselves where we are today? Like you, the NDSC is adapting to this rapidly evolving situation. Our staff is adjusting to working remotely and we’re exploring new ways to support the Down syndrome community. We are committed to providing you with up-to-date, accurate – but also practical – information and resources needed to navigate our new normal.

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NDSC is Committed to You During COVID-19

For 48 years, the mission of the National Down Syndrome Congress has been to provide information, advocacy, and support concerning all aspects of life for individuals with Down syndrome.  We’ve weathered many storms together in the past near half-century, and we will get through our current national crisis together too.  NDSC remains committed to being a leading resource of support and information to our members during this time of uncertainty and will continue to be here for you as we learn more about the coronavirus (COVID-19) and how it will affect all of us. 

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Policy & Advocacy Newsline ~ March 13, 2020

Inclusion of People with Disabilities in COVID-19 Coronavirus Policy and Plans

The COVID-19 coronavirus pandemic not only threatens the health of people with Down syndrome and other disabilities; it threatens their rights and independence across many areas, such as education, independent living, employment, transportation, housing, and even basic day-to-day activities. NDSC, through the Consortium for Citizens with Disabilities (CCD) and our other partnerships and alliances, has been working with legislators on Capitol Hill to make sure that the rights and needs of people with disabilities are included in any legislation addressing the current public health crisis and future crises.

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NDSC E-News ~ March 2020

Mission Moment
With NDSC Executive Director, David Tolleson

You matter, but do you count?

That’s a question with a simple answer in the months ahead. If you vote in your state’s primary or caucus and November’s general election; and, if you respond to the decennial census, then you definitely count…and that matters!

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Policy & Advocacy Newsline ~ February 14, 2020

President’s Budget for FY 2021 Released

President Trump has released his Budget Request for the Fiscal Year 2021 (FY 2021). This is the first step in the complex process of funding the federal government and is indicative of the Administration’s policy priorities. The House and Senate budget committees will review the budget and create their own versions, which will need to be passed by all relevant committees and through both chambers of Congress before becoming law. T

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NDSC E-News ~ January 2020

Mission Moment

With NDSC Executive Director, David Tolleson

 Since our founding nearly 50 years ago, the NDSC has fought for inclusion and promoted easier access to needed services.  In that spirit, our Board recently decided that we will no longer charge for membership.  It’s important to us that no one feels excluded from our family because they can’t afford the annual membership fee.  Supporting that decision is the fact that the NDSC Annual Convention has truly become a gathering place for the world Down syndrome community – an opportunity for our fellow organizations and the families and professionals we all support to come together.  The more we can do to remove barriers to participation, the more it helps our community.  After all, we’re better all together!

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Policy & Advocacy Newsline ~ January 21, 2020

Election Season is Upon Us: Stay Informed – Stay Engaged

As a 501(c)(3) organization, NDSC does not endorse nor recommend any candidates in any political race. Under the Internal Revenue Code, all section 501(c)(3) organizations are absolutely prohibited from directly or indirectly participating in, or intervening in, any political campaign or endorsing any candidate for elective public office. Our job is to encourage everyone to stay informed and participate in the political process, particularly as it relates to issues impacting the disability community. Below are a few resources that you can reference to learn about policy issues as they pertain to disabilities and engage with other disability community advocates.

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Policy & Advocacy Newsline ~ December 23, 2019

Happy Holidays from the NDSC Policy Team!

As 2019 comes to a close and we welcome in a new decade, we would like to take this opportunity to thank you for your interest in policy and recognition of its importance. Laws that are passed or regulations that are modified or repealed, on the national and state level, will have an impact on our loved ones with Down syndrome and their families for many years to come.

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