About NDSC

Why Become an NDSC Member? 

The National Down Syndrome Congress, known around the world as NDSC, is the leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome, from the moment of prenatal diagnosis through adulthood.

NDSC is a 501(c)3 organization governed by our members comprised of self-advocates, parents, siblings, grandparents, friends, educators, physicians, therapists, other professionals, and supporters. We have members from diverse demographic backgrounds in all 50 states and many countries around the world, all committed to serving individuals with Down syndrome and their families.

It’s Free – We invite and encourage you to become a member of NDSC, where making a choice to get involved can make a difference in the lives of people with Down syndrome and those who love them.  In January 2020, the leadership of NDSC made the decision to remove fees associated with membership because we do not feel that members should have to pay to support their loved ones.   Although we need and appreciate your financial donations, payment will no longer be a requirement of membership.

Become a Part of the NDSC Worldwide Network – Membership gives access to an extensive community of self-advocates, families, caregivers, and professionals who face similar daily challenges. Membership affords the opportunity to learn from and support each other through networking, social media groups, and at our annual Convention.

Access to UpTo-Date Information – As a leader in the Down syndrome community NDSC partners with individuals and organizations who continually provide research in all aspects of Down syndrome, including medical, educational, psychological, and social issues.  Members have access to the newest and most accurate information on Down syndrome from the professional whose life work is to better the lives of those with Down syndrome.  Many of which sit on our Board of Directors and Professional Advisory Council.

Representation in Washington, D.C. – You can be sure that your voice heard on important legislative issues. The NDSC Policy & Advocacy Team works on behalf of NDSC members to advocate for equal rights and improved opportunities for people with Down syndrome.  This team, comprised of disability policy professionals who are experienced, well-connected, and highly regarded policy experts and leaders works with the engaged, experienced, and bipartisan NDSC Public Policy Advisory Council that represents a diversity of viewpoints and experiences on your behalf.

A Voice in Issues That Matter– NDSC members are invited to also join the National Down syndrome Advocacy Coalition (NDAC).  NDAC is NDSC’s nationwide grassroots advocacy program that provides advocacy training materials, opportunities, and resources for all members, regardless of their level of advocacy experience. NDSC’s Policy team will give you the tools you need to effect change in Washington, D.C., your state,  and local levels. Although this is also a free benefit of NDSC membership, NDAC membership requires a separate registration.

By completing the member profile form, you are joining the nation’s leading organization providing information and resources to those touched by Down syndrome.  You will be added to our mailing list and will receive updates on our latest news and events. You can manage the content you wish to receive from NDSC once you have completed your free member profile.  Complete your free member profile and start enjoying the benefits of being an NDSC member today!