The Georgia Down Syndrome Consortium

The consortium, as well as other organizations and advocates around the state of Georgia, worked to get individuals with Down syndrome and I/DD, and their caregivers, moved up in priority for COVID-19 vaccines.  Here’s our statement of thanks following Governor Kemp’s February 25th decision.

What is the Georgia Down Syndrome Consortium?

The Georgia Down Syndrome Consortium was formed in 2018, to find a way for like-minded organizations to work together to serve the Down syndrome community – because we’re ALL BETTER TOGETHER!

Headquartered in Roswell, the National Down Syndrome Congress is the nation’s oldest resource of support and information for anyone touched by or seeking to learn about Down syndrome, from the moment of a prenatal diagnosis through adulthood.  The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. When we empower individuals and families from all demographic backgrounds, we reshape the way people understand and experience Down syndrome.  We have worked tirelessly over the years to foster a network of local and regional groups across the country to reach out and embrace thousands of people with Down syndrome, their families, friends and the professionals who support them.

Founded by a small group of parents in 1979, The Down Syndrome Association of Atlanta (DSAA) is a 501 (c)(3) Georgia non-profit organization dedicated to providing individuals with Down syndrome and their families life-long community connections.  Today, DSAA serves 800 families in 18 counties in the greater Metro-Atlanta area with its programs, services, resources, and activities for all age groups. It is the largest volunteer organization for those touched by Down syndrome in Georgia.

GiGi’s Playhouse Atlanta is a non-profit organization dedicated to providing free therapeutic programming, resources, and support to families of individuals with T21/ Trisomy 21/Down syndrome. Programs at GiGi’s Playhouse Atlanta address the developmental needs of children with T21/Down syndrome, including the areas of gross motor, fine motor, intellectual, social, and communication development.

With locations in Midtown and Roswell, Gigi’s Playhouse offers free programs and through the Generation G Campaign for global acceptance, they EMPOWER families by maximizing opportunities for daily achievement and lasting acceptance.

ADMH was founded to address health disparities experiences by individuals with disabilities and provide a comprehensive interdisciplinary team approach to addressing healthcare and social service needs in this patient population. ADMH partners with Urban Family Practice Associates (UFPA), utilizing the Patient Centered Medical Home model.  PCMH puts the patient, at the center of the health care system, and providing primary care that is accessible, continuous, comprehensive family-centered, coordinated and compassionate. During your visit, healthcare is provided by an experienced team including physicians, medical assistants, social workers, behavior analysts, and patient advocates.


The Down Syndrome Clinic at Emory, directed by Dr. Amy Talboy, is the clinical arm of Emory’s Down Syndrome program which includes physicians, nurses, genetic counselors, scientists, researchers and other staff devoted to improving the health and lives of people with Down syndrome. The Down Syndrome Clinic serves children with Down syndrome from birth through young adulthood. As a specialized resource which compliments the care provided by each child’s primary doctor, they assure that each child receives all the current standards-of-care related to Down syndrome and that intervention plans uniquely meet the child’s medical and developmental needs. As part of the Down Syndrome Program at Emory they assure that families stay abreast of the latest research in the field. Doctors, researchers and scientists collaborate with other top researchers across the country, bringing cutting edge research offerings to our region in the form of basic science and translational research, including clinical trials.