Programs & Resources

Down Syndrome Clinic Listing

In addition to following the healthcare guidelines for individuals with Down syndrome and using the growth charts from the CDC (links can be found under “Basics of Proper Health Care” here), we have compiled and continue to update the information for Down syndrome clinics around the country.  While individuals can be seen by pediatricians, internists, and family medical providers, families may wish to seek an appointment with one of the many providers who have significant experience with Down syndrome, if there is one located nearby.

ARIZONA

Phoenix Children Hospital
Phone:(602) 933-0670
Clinical Director: Richard Frye MD
Patient Age: Birth-18
Address:1919 E Thomas Rd Phoenix, AZ 85016
Website:www.phoenixchildrens.org/centers-programs/barrow

Children’s Clinics Rehabilitative Services
Phone: (520)-324-5437
Clinical Director: Dr. Sydney Ride
Patient Age: Birth-18
Address: 5301 E Grant Rd, Tucson, AZ 85712
Website:https://www.childrensclinics.org/

ARKANSAS

Arkansas Children Hospital GENETICS AND Metabolic Clinic
Phone: 501-364-1564
Clinical Directors: Suzanne Huetter, APN Dr. Bradley Schaeffer, Director
Patient Age: Birth – 18
Address:#1 Children’s Way Slot 512-22 Little Rock, AR 72202
Website:www.archildrens.org/programs-services/a-to-z-services-list/genetic-disorders/genetics-and-metabolic-clinic

University of Arkansas Medical Sciences Dennis Development Center
Phone:(501)-364-1830
Clinical Director: Dr. Kent McKelvey, Jr
Patient Age: 10- Adult
Address:5800 West 10th St. Ste 605 Little Rock, AR 72204
Website:https://pediatrics.uams.edu/clinical-programs-affiliates/dennis-developmental-center/

CALIFORNIA

Lucile Packard Children’s Hospital-Stanford Center for Down Syndrome
Phone:(650)-723-6858
Clinical Director: Melanie Ann Manning MD
Patient Age: Birth – 18
Address:730 Welch Rd 2nd Fl Palo Alto, CA94304
Website:http://www.stanfordchildrens.org/en/service/down-syndrome

UCSF Benioff Children’s Hospital Oakland Charlie’s Clinic
Phone:(510)-428-3301
Clinical Director: Noemi Spinazzi MD
Patient Age: Birth-21
Address:5220 Claremont Ave Oakland CA 94618
Website:https://sites.google.com/view/charlies-clinic/home?authuser

Children Hospital of Orange County Children’s Neurology (Associated with CHOC) Genetics Center (Associated with CHOC)
Phone:(714)-509-3609
Clinical Directors: Dr. Ira T. Lott and Dr. Anne Tournay
Patient Age: Birth – 18
Address: Hospital -1201 W La Veta Ave, Orange, CA 92868 / Neurology – 505 S Main St Ste 350 Orange, CA 92868 / Genetics – 211 S Main St Orange, CA 92868
Website:https://geneticscenter.com/

Children’s Hospital of San Diego
Phone:(858)-966-1700
Clinical Director: Lauren Gist, MD, MPH, UCSD
Patient Age: Birth – 18
Address:7920 Frost Street, suite 200 (Clinic Location), San Diego, CA 92123
Website:https://www.rchsd.org/programs-services/down-syndrome-center/

UC Irvine Adult DS Clinic
Phone:(714)-456-8443
Clinical Director: Ira Lott
Patient Age: 21 and older
Website:https://www.dsaoc.org/uci-adult-primary-care-down-syndrome-clinic.html

UCSD Adult DS Clinic
Phone:(858)-657-8540
Clinical Director: Mike Raffi MD, PhD
Patient Age: 35 and older
Website: https://health.ucsd.edu/specialties/neuro/specialty-programs/Pages/down-syndrome-center.aspx

COLORADO

Linda Crnic Institute, Children’s Hospital Colorado
Phone:(720)-777-6750
Clinical Director: Dr. Fran Hickey
Patient Age: Birth-21
Address: Children’s Hospital Colorado, Anschutz Medical Center, 13123 E. 16th Ave., ML ­ B745, Aurora, CO 80045
Website: www.childrenscolorado.org

Federico F. Pena Southwest Family Health Center Denver Adult DS Clinic 
Phone:(303)-436-4949
Clinical Director: Dr. Barry Martin, M.D.
Patient Age: 21 years and older
Address:1339 S. Federal Blvd., Denver, CO 80219
Website:https://www.denverhealth.org/services/denver-health-and-global-down-syndrome-foundation-launch-pilot-adult-down-syndrome-clinic

CONNECTICUT

University of Connecticut Health Center Human Genetics
Phone:(860)-523-6470
Clinical Directors: Drs. Jaclyn Beirne and Joseph Tucker,
Patient Age: All
Address:65 Kana Street West Hartford, CT 06119
Website:https://health.uconn.edu/medical-genetics

Yale
Phone:(203)-688-6361
Clinical Director: Gerard J. Kerins MD
Patient Age: 18-adult
Address: 20 York Street, New Haven, CT. 06510-3202
Website:https://medicine.yale.edu/genetics/genetics/appointments/

DELAWARE

A.I. duPont Hospital for Children/Nemours
Phone: (302)-651-4200
Clinical Director: Dr. Nina Powell-Hamilton
Patient Age: Birth- 21
Address:1600 Rockland Rd Wilmington, DE 19803
Website:www.nemours.org

Wilmington Hospital; Christiana Care Health System
Phone:(302)-320-6300
Clinical Director: Charmaine Smith Wright, M.D.
Patient Age: 18 and up
Address:501 West 14th Street, 2nd Floor Wilmington, DE 19801
Website:https://christianacare.org/services/primarycare/center-special-health-care-needs-primary-care/
1601 Northwest 12 Avenue Miami, FL 33136

FLORIDA

Hope Haven Children’s Clinic / Down Syndrome Center
Phone:(904)-346-5100
Clinical Director: Laura Watts, M.Ed.,
Patient Age: Prenatal – 21
Address:4600 Beach Boulevard Jacksonville, FL 32207
Website: www.hope-haven.org

The Howard Phillips Center for Children and Families
Phone: (407)-648-7802
Address:60 W Gore St 2nd Floor Orlando, FL 32806
Website:https://www.arnoldpalmerhospital.com/pediatric-specialties

Mailman Center for Child Development University of Miami
Phone:(305)-243-6631
Address:1601 Northwest 12 Avenue Miami, FL 33136
Website:http://pediatrics.med.miami.edu/mailman-center

GEORGIA

Urban Family Practice Associates
Phone:(678)-595-4854
Clinical Directors: Andrea Videlefsky, MD and Janice Nodvin, Clinic Coordinator
Patient Age: 14 – Adult
Address:2520 Windy Hill Rd. Ste 303 Marietta, GA 30067 Mailing: P.O. Box 88534 Atlanta GA 30356
Website:www.theadmh.org

Emory Down Syndrome Clinic
Phone:(404)-778-1363
Clinical Directors: Amy Talboy, Medical Director and Hailey Dennis, Clinic Coordinator
Patient Age: Birth – 18
Address: 1365 Clifton Road, NE, Building B, Suite 220, Atlanta GA, 30322
Website:http://genetics.emory.edu/clinical

ILLINOIS

Advocate Lutheran General Hospital -Adult DS Center
Phone:(847)-318-2303
Clinical Director: Brian Chicoine, MD
Patient Age: 12 – Adult
Address:1610 Luther Lane Park Ridge, IL 60068
Website:http://www.advocatehealth.com/downsyndromecenter

University of Chicago Medicine Comer Clinic
Phone:(773)-702-3095
Clinical Director: Peter Joseph Smith, MD
Address: 950 East 61st Street SSC, Suite 207, Chicago, IL 60637
Website:http://www.uchicagokidshospital.org/specialties/

INDIANA

Riley Hospital for Children at Indiana University Health
Phone:(317)-944-4846
Clinical Director: Charlene Davis, RN
Patient Age: Birth -18
Address:702 Barnhill Drive, Room 1601, Indianapolis, IN 46202-5225
Website:https://www.rileychildrens.org/departments/down-syndrome-program

Deaconess Hospital and Riley Hospital for Children
Phone:(812) 450-5000
Clinical Director: Anita Hagan, RN, MSN, CNS
Patient Age: Birth – 19
Address: 4133 Gateway Blvd., Suite 220, Newburgh, IN 47630
Website:http://www.deaconess.com/

Peyton Manning Children’s Hospital- St Vincent
Phone:(317)-338-5288
Clinical Director: Luis F. Escobar
Patient Age: Birth- 18
Address:10330 N. Meridian Street Indianapolis, IN 46290
Website:http://www.peytonmanningch.org/

IOWA

University of Iowa Hospitals and Clinics
Phone:1-855-543-2884
Clinical Director: Dianne McBrien, MD
Patient Age: All
Address: Center for Disabilities and Development, University of Iowa Children’s Hospital, 100 Hawkins Drive, Iowa City, Iowa 52242-1011
Website:https://uichildrens.org/medical-services/center-disabilities-and-development

LOUISIANA

Children’s Hospital of New Orleans
Phone:(504)-896-9254
Clinical Director: Angela Lombardo
Patient Age: All
Address:200 Henry Clay Ave., New Orleans, LA 70118
Website:www.chnola.org

MARYLAND

University of Maryland Children’s Hospital
Phone:(410)-706-2300
Clinical Director: Adam Spanier, MD, Ph.D.,MPH
Patient Age: Birth – 21
Address: 737 W. Lombard Room 128 Baltimore, MD 21201
Website:http://umm.edu/programs/childrens/services/behavioral-and-developmental

Kennedy Krieger Institute
Phone:(443)-923-9400
Clinical Director: George Capone
Patient Age: Birth – 21
Address:707 N. Broadway Baltimore, MD 21205
Website:https://www.kennedykrieger.org/

MASSACHUSETTS

Mass General Hospital
Phone:(617)-643-8912
Clinical Director: Brian Skotko
Patient Age: All
Address:125 Nashua Street, Suite 821 Boston, MA  0211
Website:https://www.massgeneral.org/children/down-syndrome

Boston Children Hospital
Phone:(857)-218-4329
Clinical Director: Angela Lombardo
Patient Age: Birth-21
Address:300 Longwood Avenue, Boston, MA  02115
Website:www.childrenshospital.org/downsyndrome

Tewksbury Hospital/ Aging and Developmental
Phone:978-851-7821 x2390
Clinical Director: Julie Moran
Patient Age:45+
Address: Tewksbury Hospital, 365 East Street, Tewksbury, MA 01876-1998
Website:https://www.mass.gov/locations/tewksbury-hospital

MICHIGAN

Doctors’ Hospital of Michigan Free Standing Private Therapy Clinic
Phone:(248)-857-6776
Clinical Director: Michelle Haney, PT
Patient Age: Birth- Adults
Address: 3000 Centerpoint Parkway, Pontiac, MI 48341
Website:europeds.org

MINNESOTA

Children’s Minnesota Down Syndrome Clinic Children’s Hospitals and Clinics of Minnesota
Phone: (612)-813-7240
Clinical Director: Dan McLellan, MD
Patient Age: Birth-19
Address:2530 Chicago AVE S Minneapolis, MN 55404
Website:www.childrensmn.org/services/care-specialties-departments/down-syndrome/

MISSOURI

University of Kansas Medical Center, Dept. of Family Medicine
Phone:913-588-1915
Clinical Director: Moya Peterson, Ph.D., APRN
Patient Age:21 and older
Address: 2000 Olathe Boulevard, Kansas City, KS 66160
Website:http://www.kumc.edu/school-of-medicine/family-medicine-and-community-health/adults-with-down-syndrome-specialty-clinic.html

Albert Pujols Wellness Center for Adults with DS
Phone:(314)-576-2300
Clinical Director: Dr. Cynthia Poelker, MD
Patient Age:17-older
Address:121 St. Luke’s Center Drive, Chesterfield, MO 63017
Website:stlukes-stl.com/services/wellness-center/index.html

St. Louis Children’s Hospital
Phone:(314) 747-4088
Clinical Director: Dorothy Grange, MD
Patient Age: Birth-21
Address: St Louis Children’s Hospital1 Children’s Place, Suite 2C, St. Louis, MO 63110
St. Louis Children’s Specialty Care Center 13001 North Outer 40, Suite 2E, Town and Country, MO 63017
Website:https://www.stlouischildrens.org/conditions-treatments/down-syndrome-center

Children’s Mercy Hospital
Phone:(816)-960-2856
Clinical Director: Nasreen Talib
Patient Age: Birth – 18 years
Address:24401 Gillham Road, Kansas City, MO 64108
Website:childrensmercy.org/downsyndrome

MONTANA

Shodair Children Hospital
Phone:(406)-444-7530
Clinical Director: Abe Elias
Patient Age: All
Address:2755 Colonial Dr. Helena, MT 59601
Website:https://shodair.org/

NEW YORK

NYU Winthrop Hospital
Phone:(516)-663-2112
Address: Winthrop’s Down Syndrome Program101 Mineola Blvd, 2nd Floor Mineola, NY 11501
Website:https://nyuwinthrop.org/services/pediatrics/down-syndrome-program/

John R. Oishei Children’s Hospital & Jacobs School of Medicine and Biomedical Sciences at the University at Buffalo
Phone:(716)-323-6410
Clinical Director: Martin T. Hoffman
Patient Age: Birth-8
Address:1001 Main Street, Buffalo NY 14203 Floor 2
Website:https://www.ochbuffalo.org/care-treatment/robert-warner-rehabilitation-center

NORTH CAROLINA

Levine Children’s Hospital at Carolinas Medical Center
Phone: (704)-381-6810
Clinical Director: Amy Blevins
Patient Age: All
Address:1000 Blythe Blvd., Charlotte, NC 28203
Website:www.levinechildrenshospital.org/body

Duke
Phone:(919)-684-0307
Clinical Director: Priya Kishnani
Patient Age: Pediatric
Address:3000 Erwin Road, Durham, NC 27705
Website:https://www.dukehealth.org/treatments/genetic-disorders/downsyndrome

NORTH DAKOTA

Sanford Health Fargo
Phone:701-234-2000
Clinical Directors: Aaron Jost and Dr. Melissa Kunkel
Address:2400 32nd Avenue S Fargo, North Dakota 58103
Website:https://www.sanfordhealth.org/doctors/lacey-rust

OHIO

Akron Children’s Hospital
Phone:330-543-8050
Clinical Director: Diane Langkamp, MD
Address: Akron Children’s Hospital One Perkins Square, Akron, Ohio 44308-1062
Website:https://www.akronchildrens.org/

Cincinnati Children’s Hospital Medical Center
Phone: 1-513-636-4200
Clinical Director: Sonya Oppenheimer, MD
Patient Age: Birth-21
Address:3333 Burnet Avenue, Cincinnati, Ohio 45229-3026

Rainbow Babies and Children’s Hospital
Phone:216-983-1220
Clinical Director: Nancy Roizen
Address:11100 Euclid Ave, Cleveland, OH 44106
Website:https://www.uhhospitals.org/rainbow/services/pediatric-emotional-and-behavioral-disorders

OREGON

Oregon Health & Science University, Doernbecher Children’s Hospital
Phone:503-346-0640
Clinical Director: Joseph Pinter
Patient Age: Birth-21
Address:3181 S.W. Sam Jackson Park Rd. Portland, Oregon 97239-3098
Website:https://www.ohsu.edu/doernbecher

PENNSYLVANIA

Children’s Hospital of Pittsburgh
Phone:(412) 692-5135
Clinical Director: Kishore Vellody
Patient Age: Birth – 18
Address:4401 Penn Ave. Pittsburgh, PA 15224
Wesbite:http://www.chp.edu/our-services/down-syndrome

Eastern Pennsylvania Down Syndrome Center’s
Phone:(610) 402-0184
Clinical Director: Donald Levick
Patient Age: Birth – 18
Address: Trexler Mall, 6900 Hamilton Blvd, Trexlertown, PA 18087
Website:http://www.epdsc.net/

Children’s Hospital of Philadelphia (CHOP)
Phone:267-426-5283
Clinical Director:Mary Pipan
Patient Age: Birth- 21
Address:3401 Civic Center Blvd., Philadelphia, PA 19104
Website:http://www.chop.edu/centers-programs/trisomy-21-program

RHODE ISLAND

Life Span
Phone:401-444-3500
Patient Age: Birth-18
Address:167 Point Street Providence, RI 02903
Website:https://www.lifespan.org/centers-services/childrens-rehabilitation-services

SOUTH CAROLINA

Greenwood Genetic Center
Phone:864-941-8100
Clinical Director: Kevin Farren
Patient Age: Prenatal
Address:106 Gregor Mendel Circle Greenwood, SC 29646
Website:https://www.ggc.org/

Medical University of South Carolina Children’s Hospital
Phone:843-792-3531
Address:165 Ashley Ave, MUSC, Charleston, SC 29425
Website:https://musckids.org/our-services/down-syndrome-center

Prisma Children’s Healthcare Palmetto Health Richland
Phone:803-434-1260
Patient Age: Birth-18
Address:14 Richland Medical Park Dr., Suite 100 Columbia, SC 29203
Website:https://www.palmettohealthchildrens.org/services/pediatric-physical-and-specialty-therapy/our-specialty-programs

TENNESSEE

Monroe Carell Jr. Children’s Hospital at Vanderbilt DS Clinic
Phone: (615) 343-3696
Clinical Director: Tonya Chavis
Patient Age: Birth – 18
Address:2200 Children’s Way Nashville, TN 37232
Website:http://www.childrenshospital.vanderbilt.org/

TEXAS

Children’s Medical Center of Dallas
Phone: 214-456-2357
Clinical Directors: Ralph DeBerardinis,MD (Director) RalphMary Esther Carlin, MD
Patient Age: Birth – 18
Address:1935 Medical District Dr. Dallas, TX 75235
Website:www.childrens.com/specialties-services/specialty-centers-and-programs

Texas Children’s Hospital and Baylor College of Medicine
Phone:832-822-3400
Clinical Director: Kathryn (Katy) Klish Ostermaier, MD
Patient Age: Birth-18
Address: The Meyer Center for Developmental Pediatrics 8080 North Stadium Drive, Suite 100 Houston, TX 77054 United States
Website:https://www.texaschildrens.org/departments/down-syndrome-clinic/our-team

UTAH

Primary Children’s Medical Center
Phone: 801-662-1600
Clinical Director: Patrick Bailey
Patient Age: Pediatric (Birth – 18)
Address:81 North Mario Capecchi Dr.
Salt Lake City, UT 84113
Website:https://intermountainhealthcare.org/locations/primary-childrens-hospital/medical-services/

VIRGINIA

Children’s Hospital of the King’s Daughters, Eastern Virginia Medical Center
Phone:(757) 668-7473
Clinical Director: Christine Houlihan, MD
Address:601 Children’s Lane, Norfolk, VA 23507
Website:https://www.chkd.org/our-doctors/medical-specialists/developmental-pediatrics/

WASHINGTON

Down Syndrome Program at Virginia Mason
Phone:(425)-557-8000
Clinical Director: Rebecca Partridge
Patient Age: Birth-18
Address:100 NE Gilman Blvd. Issaquah, WA 98027
Website:www.virginiamason.org/down-syndrome

Down Syndrome Specialty Clinic, University of Washington Medical Center Center on Human Development and Disability (CHDD)
Phone:206-598-3327
Clinical Director: Jennifer Gerdts, PhD
Patient Age: Birth- 18
Address: The University of Washington Center on Human Development and Disability Box 357920, Seattle WA 98195-7920 USA
Website:https://depts.washington.edu/chdd/ucedd/ctu_5/5_ctumain.html?x=4&y=79

WEST VIRGINIA

Kid Care Pediatrics
Phone:(304) 925-0392
Clinical Director: Dr. Robin Darnell
Patient Age: Birth-18
Address:4407 Maccorkle Avenue SE, 2nd Floor Charleston, WV 25304-2505
Website:https://www.kidcarepediatricswv.com/newpage1

WISCONSIN

Gundersen Health System
Phone:(608) 775-2599
Patient Age: Birth- 18
Website:https://www.gundersenhealth.org/services/pediatric-care/specialty/down-syndrome-clinic/

Children’s Hospital of Wisconsin
Phone:(414) 266-6259.
Clinical Director: Terri Couwenhoven, MS
Patient Age: Birth-18
Address:8915 W. Connell Ct. P.O. Box 1997 Milwaukee, WI 53226
Website:https://chw.org/medical-care/down-syndrome-clinic

Waisman Center
Phone:608-263-3301
Clinical Director: Maria Stanley
Patient Age: Birth-21
Address:1500 Highland Ave Madison, WI 53705
Website:https://www.waisman.wisc.edu/clinics/down-syndrome/