Programs & Resources

Down Syndrome Clinic Listing

In addition to following the healthcare guidelines for individuals with Down syndrome and using the growth charts from the CDC (links can be found under “Basics of Proper Health Care” here), we have compiled and continue to update the information for Down syndrome clinics around the country.  While individuals can be seen by pediatricians, internists, and family medical providers, families may wish to seek an appointment with one of the many providers who have significant experience with Down syndrome, if there is one located nearby.

ALABAMA

University of Alabama at Birmingham
Phone:205-934-9411
Patient Age:Birth-21
Birmingham,AL
Website: www.childrensal.org

ARIZONA

Phoenix Children Hospital
Phone:(602) 933-0670
Patient Age: Birth-18
Phoenix, AZ
Website:www.phoenixchildrens.org/centers-programs/barrow

Children’s Clinics Rehabilitative Services
Phone: (520)-324-5437
Patient Age: Birth-18
Tucson, AZ
Website:https://www.childrensclinics.org/

ARKANSAS

Arkansas Children Hospital GENETICS AND Metabolic Clinic
Phone: 501-364-1564
Patient Age: Birth – 18
Little Rock, AR
Website:www.archildrens.org/programs-services/a-to-z-services-list/genetic-disorders/genetics-and-metabolic-clinic

University of Arkansas Medical Sciences Dennis Development Center
Phone:(501)-364-1830
Patient Age: 10- Adult
Little Rock, AR
Website:https://pediatrics.uams.edu/clinical-programs-affiliates/dennis-developmental-center/

CALIFORNIA

Lucile Packard Children’s Hospital-Stanford Center for Down Syndrome
Phone:(650)-723-6858
Patient Age: Birth – 18
Alto, CA
Website:http://www.stanfordchildrens.org/en/service/down-syndrome

UCSF Benioff Children’s Hospital Oakland Charlie’s Clinic
Phone:(510)-428-3301
Patient Age: Birth-21
Oakland CA
Website:https://sites.google.com/view/charlies-clinic/home?authuser

Children Hospital of Orange County Children’s Neurology (Associated with CHOC) Genetics Center (Associated with CHOC)
Phone:(714)-509-3609
Patient Age: Birth – 18
Orange, CA
Website:https://geneticscenter.com/

Children’s Hospital of San Diego
Phone:(858)-966-1700
Patient Age: Birth – 18
San Diego, CA
Website:https://www.rchsd.org/programs-services/down-syndrome-center/

UC Irvine Adult DS Clinic
Phone:(714)-456-8443
Patient Age: 21 and older
Website:https://www.dsaoc.org/uci-adult-primary-care-down-syndrome-clinic.html

UCSD Adult DS Clinic
Phone:(858)-657-8540
Patient Age: 35 and older
Website: https://health.ucsd.edu/specialties/neuro/specialty-programs/Pages/down-syndrome-center.aspx

COLORADO

Linda Crnic Institute, Children’s Hospital Colorado
Phone:(720)-777-6750
Patient Age: Birth-21
Aurora, CO
Website: www.childrenscolorado.org

Federico F. Pena Southwest Family Health Center Denver Adult DS Clinic 
Phone:(303)-436-4949
Patient Age: 21 years and older
Denver, CO 
Website:https://www.denverhealth.org/services/denver-health-and-global-down-syndrome-foundation-launch-pilot-adult-down-syndrome-clinic

CONNECTICUT

University of Connecticut Health Center Human Genetics
Phone:(860)-523-6470
Patient Age: All
West Hartford, CT
Website:https://health.uconn.edu/medical-genetics

Yale
Phone:(203)-688-6361
Patient Age: 18-adult
New Haven, CT.
Website:https://medicine.yale.edu/genetics/genetics/appointments/

DELAWARE

A.I. duPont Hospital for Children/Nemours
Phone: (302)-651-4200
Patient Age: Birth- 21
Wilmington, DE
Website:www.nemours.org

Wilmington Hospital; Christiana Care Health System
Phone:(302)-320-6300
Patient Age: 18 and up
Wilmington, DE
Website:https://christianacare.org/services/primarycare/center-special-health-care-needs-primary-care/
1601 Northwest 12 Avenue Miami, FL 33136

FLORIDA

Hope Haven Children’s Clinic / Down Syndrome Center
Phone:(904)-346-5100
Patient Age: Prenatal – 21
Jacksonville, FL
Website: www.hope-haven.org

The Howard Phillips Center for Children and Families
Phone: (407)-648-7802
Orlando, FL
Website:https://www.arnoldpalmerhospital.com/pediatric-specialties

Mailman Center for Child Development University of Miami
Phone:(305)-243-6631
Miami, FL
Website:http://pediatrics.med.miami.edu/mailman-center

GEORGIA

Urban Family Practice Associates
Phone:(678)-595-4854
Patient Age: 14 – Adult
Marietta, GA
Website:www.theadmh.org

Emory Down Syndrome Clinic
Phone:(404)-778-1363
Patient Age: Birth – 18
Decatur, GA
Website:http://genetics.emory.edu/clinical

ILLINOIS

Advocate Lutheran General Hospital -Adult DS Center
Phone:(847)-318-2303
Patient Age: 12 – Adult
Park Ridge, IL
Website:http://www.advocatehealth.com/downsyndromecenter

University of Chicago Medicine Comer Clinic
Phone:(773)-702-3095
Chicago, IL
Website:http://www.uchicagokidshospital.org/specialties/

Lurie Children’s Northwestern – Chicago
Phone: (800)-543-7362
Chicago,IL
Website:https://www.luriechildrens.org

INDIANA

Riley Hospital for Children at Indiana University Health
Phone:(317)-944-4846
Patient Age: Birth -18
Indianapolis, IN
Website:https://www.rileychildrens.org/departments/down-syndrome-program

Deaconess Hospital and Riley Hospital for Children
Phone:(812) 450-5000
Patient Age: Birth – 19
Newburgh, IN
Website:http://www.deaconess.com/

Peyton Manning Children’s Hospital- St Vincent
Phone:(317)-338-5288
Patient Age: Birth- 18
Indianapolis, IN
Website:http://www.peytonmanningch.org/

IOWA

University of Iowa Hospitals and Clinics
Phone:1-855-543-2884
Patient Age: All
Iowa City, Iowa
Website:https://uichildrens.org/medical-services/center-disabilities-and-development

KANSAS

Adults with Down Syndrome Specialty Clinic – Univ of Kansas Medical Center
Patient Age:Adult
Phone:913-588-5000
Kansas City,KS
Website: www.kumc.edu

LOUISIANA

Children’s Hospital of New Orleans
Phone:(504)-896-9254
Patient Age: All
New Orleans, LA
Website:www.chnola.org

MARYLAND

University of Maryland Children’s Hospital
Phone:(410)-706-2300
Patient Age: Birth – 21
Baltimore, MD
Website:http://umm.edu/programs/childrens/services/behavioral-and-developmental

Kennedy Krieger Institute
Phone:(443)-923-9400
Patient Age: Birth – 21
Baltimore, MD
Website:https://www.kennedykrieger.org/

MASSACHUSETTS

Mass General Hospital
Phone:(617)-643-8912
Patient Age: All
Boston, MA
Website:https://www.massgeneral.org/children/down-syndrome

Boston Children Hospital
Phone:(857)-218-4329
Patient Age: Birth-21
Boston, MA
Website:www.childrenshospital.org/downsyndrome

Tewksbury Hospital/ Aging and Developmental
Phone:978-851-7821 x2390
Patient Age:45+
Tewksbury, MA
Website:https://www.mass.gov/locations/tewksbury-hospital

UMASS Memorial
Phone:508-856-5520
Worcester, MA
Website: www.umassmemorialhealthcare.org

MICHIGAN

Doctors’ Hospital of Michigan Free Standing Private Therapy Clinic
Phone:(248)-857-6776
Patient Age: Birth- Adults
Pontiac, MI
Website:europeds.org

MINNESOTA

Children’s Minnesota Down Syndrome Clinic Children’s Hospitals and Clinics of Minnesota
Phone: (612)-813-7240
Patient Age: Birth-19
Minneapolis, MN
Website:www.childrensmn.org/services/care-specialties-departments/down-syndrome/

MISSOURI

University of Kansas Medical Center, Dept. of Family Medicine
Phone:913-588-1915
Patient Age:21 and older
Kansas City, KS
Website:http://www.kumc.edu

Albert Pujols Wellness Center for Adults with DS
Phone:(314)-576-2300
Patient Age:17-older
Chesterfield, MO
Website:stlukes-stl.com/services/wellness-center/index.html

St. Louis Children’s Hospital
Phone:(314) 747-4088
Patient Age: Birth-21
St. Louis, MO
Website:https://www.stlouischildrens.org/conditions-treatments/down-syndrome-center

Children’s Mercy Hospital
Phone:(816)-960-2856
Patient Age: Birth – 18 years
Kansas City, MO
Website:childrensmercy.org/downsyndrome

MONTANA

Shodair Children Hospital
Phone:(406)-444-7530
Patient Age: All
Helena, MT
Website:https://shodair.org/

NEW YORK

NYU Winthrop Hospital
Phone:(516)-663-2112
Mineola, NY
Website:https://nyuwinthrop.org/services/pediatrics/down-syndrome-program/

John R. Oishei Children’s Hospital & Jacobs School of Medicine and Biomedical Sciences at the University at Buffalo
Phone:(716)-323-6410
Patient Age: Birth-8
Buffalo, NY
Website:https://www.ochbuffalo.org/care-treatment/robert-warner-rehabilitation-center

NORTH CAROLINA

Levine Children’s Hospital at Carolinas Medical Center
Phone: (704)-381-6810
Patient Age: All
Charlotte, NC
Website:www.levinechildrenshospital.org/body

Duke
Phone:(919)-684-0307
Patient Age: Pediatric
Durham, NC
Website:https://www.dukehealth.org/treatments/genetic-disorders/downsyndrome

NORTH DAKOTA

Sanford Health Fargo
Phone:701-234-2000
Fargo, North Dakota
Website:https://www.sanfordhealth.org/doctors/lacey-rust

OHIO

Akron Children’s Hospital
Phone:330-543-8050
Akron, Ohio
Website:https://www.akronchildrens.org/

Cincinnati Children’s Hospital Medical Center
Phone: 1-513-636-4200
Patient Age: Birth-21
Cincinnati, Ohio

Rainbow Babies and Children’s Hospital
Phone:216-983-1220
Cleveland, OH
Website:https://www.uhhospitals.org/rainbow/services/pediatric-emotional-and-behavioral-disorders

Nationwide Hospital 
Phone:(614) 722-4050
Patient Age:Pediatrics
Columbus,OH
Website: www.nationwidechildrens.org

OREGON

Oregon Health & Science University, Doernbecher Children’s Hospital
Phone:503-346-0640
Patient Age: Birth-21
Portland, Oregon
Website:https://www.ohsu.edu/doernbecher

PENNSYLVANIA

Down Syndrome Center of Western PA
Phone: (412) 692-7963
Patient Age: Birth – through adulthood
Pittsburgh, PA
Website: www.chp.edu/downsyndrome

Eastern Pennsylvania Down Syndrome Center’s
Phone:(610) 402-0184
Patient Age: Birth – 18
Trexlertown, PA
Website:http://www.epdsc.net/

Children’s Hospital of Philadelphia (CHOP)
Phone:267-426-5283
Patient Age: Birth- 21
Philadelphia, PA
Website:http://www.chop.edu/centers-programs/trisomy-21-program

RHODE ISLAND

Life Span
Phone:401-444-3500
Patient Age: Birth-18
Providence, RI
Website:https://www.lifespan.org/centers-services/childrens-rehabilitation-services

SOUTH CAROLINA

Greenwood Genetic Center
Phone:864-941-8100
Patient Age: Prenatal
Greenwood, SC
Website:https://www.ggc.org/

Medical University of South Carolina Children’s Hospital
Phone:843-792-3531
Charleston, SC
Website:https://musckids.org/our-services/down-syndrome-center

Prisma Children’s Healthcare Palmetto Health Richland
Phone:803-434-1260
Patient Age: Birth-18
Columbia, SC
Website:https://www.palmettohealthchildrens.org/services/pediatric-physical-and-specialty-therapy/our-specialty-programs

Sanford Health
Phone:(605) 333-1000
Patient Age: Pediatrics
Sioux Falls,SD
Website: www.sanfordhealth.org

TENNESSEE

Monroe Carell Jr. Children’s Hospital at Vanderbilt DS Clinic
Phone: (615) 343-3696
Patient Age: Birth – 18
Nashville, TN
Website:http://www.childrenshospital.vanderbilt.org/

TEXAS

Children’s Medical Center of Dallas
Phone: 214-456-2357
Patient Age: Birth – 18
Dallas, TX
Website:www.childrens.com/specialties-services/specialty-centers-and-programs

Texas Children’s Hospital and Baylor College of Medicine
Phone:832-822-3400
Patient Age: Birth-18
Houston, TX
Website:https://www.texaschildrens.org/departments/down-syndrome-clinic/our-team

UTAH

Primary Children’s Medical Center
Phone: 801-662-1600
Patient Age: Pediatric (Birth – 18)
Salt Lake City, UT
Website:https://intermountainhealthcare.org/locations/primary-childrens-hospital/medical-services/

VIRGINIA

Children’s Hospital of the King’s Daughters, Eastern Virginia Medical Center
Phone:(757) 668-7473
Norfolk, VA
Website:https://www.chkd.org/our-doctors/medical-specialists/developmental-pediatrics/

WASHINGTON

Down Syndrome Program at Virginia Mason
Phone:(425)-557-8000
Patient Age: Birth-18
Issaquah, WA
Website:www.virginiamason.org/down-syndrome

Down Syndrome Specialty Clinic, University of Washington Medical Center Center on Human Development and Disability (CHDD)
Phone:206-598-3327
Patient Age: Birth- 18
Seattle WA
Website:https://depts.washington.edu/chdd/ucedd/ctu_5/5_ctumain.html?x=4&y=79

WEST VIRGINIA

Kid Care Pediatrics
Phone:(304) 925-0392
Patient Age: Birth-18
Charleston, WV
Website:https://www.kidcarepediatricswv.com/newpage1

WISCONSIN

Gundersen Health System
Phone:(608) 775-2599
Lacrosse,WI
Patient Age: Birth- 18
Website:https://www.gundersenhealth.org/services/pediatric-care/specialty/down-syndrome-clinic/

Children’s Hospital of Wisconsin
Phone:(414) 266-6259.
Patient Age: Birth-18
Milwaukee, WI
Website:https://chw.org/medical-care/down-syndrome-clinic

Waisman Center
Phone:608-263-3301
Patient Age: Birth-21
Madison, WI
Website:https://www.waisman.wisc.edu/clinics/down-syndrome/

This list is in partnership with DSMIG. Visit their website below.