Welcome to the NDSC!
Founded in 1973, the National Down Syndrome Congress is the country’s oldest national organization for people with Down syndrome, their families, and the professionals who work with them. We provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome, and work to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.

Take a look at some scenes from
our Giant Family Reunion
in Indianapolis!
 
We know you’ll want to
j
oin us next summer
in Phoenix!
Mark your calendars now:
June 25 - 28, 2015
 
 

An awareness event that
raises
  funds, too!
Get more information here!

 
 

Because accurate information is empowering…

The purpose of the Down Syndrome Prenatal Testing Pamphlet (pictured right) is to provide current, accurate, and free information about Down syndrome to pregnant women. The pamphlet is available in English and Spanish, in both print and electronic formats. View or download the pamphlets at www.downsyndrometest.org.
 
The Global Down Syndrome Foundation and the National Down Syndrome Congress believe this jointly created and distributed pamphlet will fulfill a critical need for pregnant women and families.
 prenataltestingpamphletenglish-001Research in the U.S. shows the majority of doctors and medical students receive little or no training related to prenatal diagnosis for Down syndrome, and parents often receive inaccurate information about the diagnosis.“We believe that this pamphlet goes a long way in satisfying the 2008 Prenatally and Postnatally Diagnosed Conditions Awareness Act,” said David Tolleson, Executive Director of the National Down Syndrome Congress. “Our members and friends have been extremely supportive of this joint initiative with the Global Down Syndrome Foundation and we believe tens of thousands of women and families will benefit from having the current, accurate information presented in the pamphlet.”

NDSC Blog: Check our blog for the latest news, events and information. Read more