The National Down Syndrome Congress (NDSC) is a membership-sustained not-for-profit organization dedicated to an improved world for individuals with Down syndrome. Founded in 1973, we are the leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome, from the moment of a pre-natal diagnosis through adulthood.
The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. When we empower individuals and families from all demographic backgrounds, we reshape the way people understand and experience Down syndrome.
We have worked tirelessly over the years to foster a network of local and regional groups across the country to reach out and embrace thousands of people with Down syndrome, their families, friends and the professionals who support them.
We are the people who believe in our kids, demand their rights and get them affirmed. We are the community who supports them in all they do from infancy to adulthood. We are also people with Down syndrome, working together for a better future.
Our Mission and Vision Statements
The mission of the National Down Syndrome Congress is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.
The vision of the NDSC is a world with equal rights and opportunities for people with Down syndrome.
- NDSC Publications
Down Syndrome News is a quarterly print publication and is a benefit included with membership. It is written for parents and professionals alike and contains book reviews, articles and a variety of items reflecting the wide spectrum of interests and common concerns of our membership.
You can view and download issues of Down Syndrome News here.
The NDSC Governmental Affairs Newsline is sent via email as policy issues warrant, and is available to any member requesting to receive it electronically. It is an update of activities at the federal level that affect people with Down syndrome.
Archived copies of Governmental Affairs Newslines can be found here.
Additional publications include brochures, pamphlets, and informational literature in all areas pertinent to Down syndrome. Periodically, as issues warrant, alerts are sent to our parent groups and other interested parties on topics ranging from education to medicine to legal or legislative issues.