Programs & Resources

Local and National Support Networks

Who can I look to for help and support?

The NDSC has connections to a wide-reaching network of local, regional and national organizations serving people with Down syndrome and their families. Throughout history, this network has supported each other, learning and growing together into a dynamic community. As a member of our community, we offer our in-depth knowledge and support to you.

For parents and family members of individuals with Down syndrome, local organizations play a critical role in offering support, information and resources to the families and individuals with Down syndrome. They offer on-the-ground support to a diverse population in all corners of the United States.

Because these organizations are so valuable, we urge you to search our Affiliate Directory for a local Down syndrome organization closest to you to learn more and become involved.

There are also additional national resources to explore. Please take a look at the organizations that partner with the NDSC on various projects and initiatives each year.

National Resources

Down Syndrome Affiliates in Action (DSAIA)

is a trade organization which works to support and advance the growth and service capabilities of its member local and regional Down syndrome organizations. It serves to be the conduit of value-driven training, programs, best practices and support for its members.

PO Box 2122
Bismarck, ND 58502
701-425-7129
info@dsaia.org
www.dsaia.org

The Global Down Syndrome Foundation (GDSF)

is dedicated to significantly improving the lives of people with Down syndrome through research, medical care, education and advocacy.

3300 East First Ave. Suite 390
Denver, CO 80206
303-321-6277
www.globaldownsyndrome.org

The International Down Syndrome Coalition (IDSC)

is a valuable partner in the quest to ensure that women have access to free, accurate information about Down syndrome so they can provide truly informed consent when considering pregnancy-related screenings and diagnostic tests.

901-413-2047
idsc.information@gmail.com
www.theidsc.org

The International Mosaic Down Syndrome Association (IMDSA)

provides support, information and research to any family, individual or professional whose life has been affected by mosaic Down syndrome.

PO Box 354
Trenton, OH 45067
888-MDS-LINK (888-637-5465)
www.imdsa.org

The National Down Syndrome Adoption Network (NDSAN)

is a nonprofit program that offers support and information to parents whose child has received a diagnosis of Down syndrome and may be considering an adoption plan. They offer a listening ear and information and keep a registry of families from all over the United States who are interested in adopting a child with Down syndrome within the US. NDSAN is a nonprofit program and charges no fees for their services.

c/o DSAGC
644 Linn Street, Suite 1128
Cincinnati, OH 45203
Birth Parent Line: 513-213-9615
Adoptive Parent Line: 513-709-1751
www.ndsan.org

The National Down Syndrome Society (NDSS)

is a national advocate for the value, acceptance and inclusion of people with Down syndrome. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.

666 Broadway, New York, NY 10012
800-221-4602
info@ndss.org
www.ndss.org

 

Affiliate Directory

ALABAMA

*Down Syndrome Alabama
Birmingham, AL
Phone: 205-988-0810
Email: downsyndromealabama@gmail.com
Website: www.downsyndromealabama.org

*FRIENDS
Dothan, AL
Phone: 334-726-2075
Email: hallsareus5@comcast.net
Website: http://downsyndromefriends.org/

Down Syndrome Society of Mobile County
Mobile, AL
Phone: 251-342-3122
Email: downsyndromesociety@gmail.com
Website:
www.dssmc.com

Bringing Up Down Syndrome BUDS
Madison, AL
Phone: 214-729-6606
Email: BUDS@budsonline
Website:
budsonline.org

Montgomery Area Down Syndrome Outreach Group
Montgomery, AL
Email: montgomeryareadownsyndrome@gmail.com
Website: http://www.montgomeryareadownsyndrome.com/

ALASKA

*Alaska Chapter NDSC
Anchorage, AK
Phone: 907-667-6677
Website: www.akdownsyndrome.org

ARIZONA

*Sharing Down Syndrome Arizona! Inc
Gilbert, AZ
Phone: 480-926-6500
Email: gina@sharingds.org
Website: www.sharingds.org

*Down Syndrome Network AZ
Phoenix, AZ
Phone: 480-759-9150
Email: info@dsnetworkaz.org
Website: www.dsnetworkaz.org

*Southern Arizona Network for Down Syndrome
Tucson, AZ
Phone: 520-477-2637
Email: info@sandsaz.org
Website: www.sandsaz.org

ARKANSAS

Down Syndrome Connection of Northwest Arkansas
Springdale, AR
Phone:479-644-9208
Email: jennifermcwhorter@dscnwa.com
Website: www.dscnwa.com

CALIFORNIA

*Down Syndrome Association of Orange County
Costa Mesa, CA
Phone: 714-540-5794
Email: info@dsaoc.org
Website: www.dsaoc.org

*Down Syndrome Connection of the Bay Area
Danville, CA
Phone: 925-362-8660
Email: dscba@dsconnection.org
Website: www.dsconnection.org

*Down Syndrome Association of Central California
Fresno, CA
Phone: 559-228-0411
Email: om@dsacc.org
Website: www.dsacc.org

*Down Syndrome Association of Hemet
Hemet, CA
Phone: 951-852-1054
Email: dsaie@dsaie.org
Website: www.dsaie.org

Tulips and Triumphs
Newbury Park, CA
Email: jjmcjloper@verizon.net

Down Syndrome Foundation of Orange County
Newport Beach, CA
Phone: 949-757-1177
Email: info@dsfoc.org
Website: www.dsfoc.org

Club 21
Pasadena, CA
Phone: 626-844-1821
Email: info@clubtwentyone.org
Website: www.clubtwentyone.org

*Down Syndrome Information Alliance
Sacramento, CA
Phone: 916-658-1686
Email: info@downsyndromeinfo.org
Website: www.downsyndromeinfo.org

*Down Syndrome Association of San Diego
San Diego, CA
Phone: 619-594-7389
Website: www.dsasdonline.org

DS Action
San Diego, CA
Phone: 619-694-4615
Email: sharla.hank@dsaction.com
Website: www.dsaction.com

Silicon Valley Down Syndrome Network
San Jose, CA
Phone: 408-771-4796
Email: info@svdsn.com
Website: www.svdsn.org

*Down Syndrome Special Needs Network
Santa Maria, CA
Phone: 805-937-9458
Email: hofflouise@aol.com

*Down Syndrome Association North Bay
Santa Rosa, CA
Phone: 707-537-8001
Email: dihobaugh@sbcglobal.net
Website: http://www.sonomacountydownsyndromesupport.org

The Arc Solano /Solano Parents United for Down Syndrome
Vallejo, CA
Phone: 707-552-2935
Email: arcgforcier@email.com
Website: www.thearcsolano.org

Down Syndrome Association of Los Angeles
Van Nuys, CA
Phone: 818-786-0001
Email: info@dsala.org
Website: www.dsala.org

COLORADO

*Colorado Springs Down Syndrome Association
Colorado Springs, CO
Phone: 719-633-1133
Email: info@csdsa.org
Website: www.csdsa.org

Rocky Mountain Down Syndrome Association
Denver, CO
Phone: 303-797-1699
Email: info@rmdsa.org
Website: www.rmdsa.org

CONNECTICUT

Connecticut Down Syndrome Congress
Meridien, CT
Phone: 888-486-8537
Email: manager@ctdownsyndrome.org
Website: www.ctdownsyndrome.org

DELAWARE

*Down Syndrome Association of Delaware
Middletown, DE
Phone: 302-995-1004
Website: www.dsadelaware.org

FLORIDA

*21 & Change, Inc.
Riverview, FL
Phone: 910-273-7049
Email: info@21andchange.org
Website: www.21andchange.org

*Gold Coast Down Syndrome Organization
Boynton Beach, FL
Phone: 561-752-3383
Email: gcdso@bellsouth.net
Website: www.Goldcoastdownsyndrome.org

Manasota BUDS
Bradenton, FL
Phone: 941-907-0499
Email: info@manasotabuds.org
Website: www.manasotabuds.org

*F.R.I.E.N.D.S. Support
Brandon, FL
Phone: 813-245-2782
Email: info@friendssupport.org
Website: www.friendssupport.org

*Treasure Coast Down Syndrome Awareness Group
Hobe Sound, FL
Phone: 772-546-7057
Email: sacs01@bellsouth.net
Website: www.tcdownsyndromeag.org

*Down Syndrome Association of Jacksonville
Jacksonville, FL
Phone: 904-353-6300
Email: dsaj@bellsouth.net
Website: www.dsaj.org

*Down Syndrome Association of Central Florida
Orlando, FL
Phone: 407-478-5621
Email: info@dsacf.org
Website: www.dsacf.org

Down Syndrome Foundation of Florida
Orlando, FL
Email: info@dsfflorida.org
Website: www.dsfflorida.org

*F.E.D.S. of Brevard
Merritt Island, FL
Email: info@fedsofbrevard.org
Website: www.fedsofbrevard.org

*Fun Coast Down Syndrome Association
Palm Coast, FL
Phone: 386-447-8034
Email: funcoastdown@bellsouth.net
Website: www.funcoastdownsyndrome.com

*Broward Gold Coast Down Syndrome Organization
Sunrise, FL
Phone: 954-577-4122
Email: ddebraga@bgcdownsyndrome.org
Website: www.bgcdownsyndrome.org

GEORGIA

Down Syndrome Association of Atlanta
Atlanta, GA
Phone: 404-320-3233
Email: info@dsaatl.org
Website: www.dsaatl.org

*Upside of Downs
Augusta, GA
Phone: 706-799-5347
Email: kkstrite@gmail.com

HAWAII

Down Syndrome ‘Ohana of Hawaii
Honolulu, HI
Phone: 808-843-2502
Email: ds_ohana@yahoo.com
Website: www.dsohawaii.com

IDAHO

*Down Syndrome Connections NW
Hayden, ID
Phone: 208-755-5079
Email: info@dsconnections.com
Website: www.dsconnections.com

*Treasure Valley Down Syndrome Association
Meridian, ID
Phone: 208-378-9912
Email: president@idahodownsyndrome.org
Website: www.idahodownsyndrome.org

ILLINOIS

*Champaign County Down Syndrome Network
Champaign, IL
Phone: 217-351-4163
Email: info@champaigndsn.org
Website: www.champaigndsn.org

Livingston Area Down Syndrome Society
Chatsworth, IL
Phone: 815-689-2202
Email: info@ladss.org
Website: www.ladss.org

Riverbend Down Syndrome Association
Glen Carbon, IL
Phone: 618-667-8771
Email: secretary@riverbendds.org
Website: www.riverbendds.org

*Gigi’s Playhouse
Hoffman Estates, IL
Phone: 847-885-7529
Email: jenni@gigisplayhouse.org
Website: www.gigisplayhouse.org

*Heart of Illinois Down Syndrome Association
Morton, IL
Phone: 309-712-4852
Email: info@hoidsa.org
Website: www.hoidsa.org

*Central IL Down Syndrome Organization
Normal, IL
Phone: 309-452-3264
Website: www.cidso.org

*UPS for DownS
Schaumburg, IL
Phone: 847-895-2100
Email: info@upsfordowns.org
Website: www.upsfordowns.org

Lincoln Land Down Syndrome Society
Springfield, IL
Phone: 217-741-1832
Email: jason.schnepp@gmail.com
Website: www.lldss.org

NADS
Wilmette, IL
Phone: 630-325-9112
Email: info@nads.org
Website: www.nads.org

INDIANA

* Down Syndrome Family Connection
Bloomington, IN
Phone: 812-339-2012
Email: Cyndi@downsyndromefamilyconnection.org
Website: www.downsyndromefamilyconnection.org

Down Syndrome Association of Central Indiana
Carmel, IN
Phone: 317-574-9757
Email: MKaye62801@aol.com

*Down Syndrome Association of Northeast Indiana
Ft. Wayne, IN
Phone: 260-471-9964
Email: dsani4u@aol.com
Website: www.dsani.org

*Elkhart Co. Down Syndrome Support Group
Goshen, IN
Phone: 574-534-3931
Email: ecdssg@mac.com
Website: www.ecdssg.org

*Down Syndrome Family Support and Advocacy Group (dba Michiana Down Syndrome)
Granger, IN
Phone: 574-334-7734
Email: info@michianadownsyndrome.org
Website: www.michianadownsyndrome.org

*Down Syndrome Association of Northwest Indiana
Highland, IN
Email: dsa@dsaofnwi.org
Website: www.dsaofnwi.org

*Dads Appreciating Down Syndrome (D.A.D.S.)
Indianapolis, IN
Phone: 317-523-5888
Website: www.dadsnational.org

*Down Syndrome Indiana
Indianapolis, IN
Phone: 317-925-7617
Email: info@dsindiana.org
Website: www.dsindiana.org

Down Syndrome Support Assoc. of Southern Indiana
New Albany, IN
Phone: 812-948-5182
Email: dssasi@dssasi.com
Website: www.dssasi.org

SMILE on Down Syndrome
Newburgh, IN
Phone: 812-925-6839
Email: nina@smileondownsyndrome.org
Website: www.smileondownsyndrome.org

IOWA

Hawkeye Area Down Syndrome Association
Cedar Rapids, IA
Email: eharlan@hadsa.org
Website: www.hadsa.org

*Tri-State Down Syndrome Network
Sioux Center, IA
Phone: 712-722-2142
Email: maassen@mtcnet.net

*Northwest Iowa Down Syndrome Society
Spencer, IA
Phone: 712-580-6671

Designer Genes Down Syndrome Group
Waterloo, IA
Email: designergenes2005@yahoo.com

KANSAS

*Down Syndrome Guild of Greater Kansas City
Mission, KS
Phone: 913-384-4848
Email: info@kcdsg.org
Website: www.kcdsg.org

Down Syndrome Society of Wichita
Wichita, KS
Phone: 316-977-9339
Email: info@dsswichita.org
Website: www.dsswichita.org

KENTUCKY

Down Syndrome of South Central Kentucky
Bowling Green, KY
Website: www.dssgsck.org

*Down Syndrome Association of Central Kentucky
Lexington, KY
Phone: 859-494-7809
Email: dsack.org@gmail.com
Website: www.dsack.org

*Down Syndrome of Louisville, Inc.
Louisville, KY
Phone: 502-495-5088
Email: dianam@downsyndromeoflouisville.org
Website: www.downsyndromeoflouisville.org

*Green River Area Down Syndrome Association
Owensboro, KY
Phone: 270-925-0195
Email: info@gradsa.org
Website: www.gradsa.org

LOUISIANA

*Down Syndrome Awareness Group
Baton Rouge, LA
Website: www.dsagbr.org

*Down Syndrome Association of Acadiana
Lafayette, LA
Phone: 337-234-3109
Email: dsaa@dsaa.info
Website: www.dsaa.info

*Down Syndrome Association of Greater New Orleans
New Orleans, LA
Phone: 504-259-6201
Email: info@dsagno.org
Website: www.dsagno.org

Up with Downs
Shreveport, LA
Phone: 318-797-8575
Email: upwithdowns@hotmail.com
Website: www.upwithdowns.com

*Upside Downs, Inc.
Thibodaux, LA
Phone: 985-447-8188
Email: info@upside-downs.org
Website: www.upside-downs.org

MAINE

Maine Down Syndrome Network
Windham, ME
Phone: 866-571-2223
Email: info@dsmaine.org
Website: www.dsmaine.org

MARYLAND

Anne Arundel County Down Syndrome Connection
Arnold, MD
Phone: 888-279-2279
Email: t21connection@yahoo.com
Website: www.downsyndromeconnection.com

Chesapeake Down Syndrome Parent Group, Inc.
Baltimore, MD
Phone: 410-321-5434
Email: info@cdspg.org
Website: www.cdspg.org

*Down Syndrome Network of Montgomery County (DSNMC)
Rockville, MD
Phone: 301-979-1112
Email: admin@dsnmc.org
Website: www.dsnmc.org

*F.R.I.E.N.D.S
Middletown, MD
Phone: 301-371-7047
Email: friendsoffredco@gmail.com
Website: www.friendsoffredco.org

MASSACHUSETTS

*Massachusetts Down Syndrome Congress
Burlington, MA
Phone: 800-664-6372
Email: mdsc@mdsc.org
Website: www.mdsc.org

Berkshire County ARC Down Syndrome Family Group
Pittsfield, MA
Phone: 413-499-4241 265
Email: mtiffany@bcarc.org

Down Syndrome Resource Group of Western MA
Springfield, MA
Phone: 800-536-2910, 413-794-8342
Email: info@dssupport.org
Website: www.dssupport.org

MICHIGAN

*St. Clair County Down Syndrome Support Group
Fair Haven, MI
Phone: 810-367-2045
Email: kellydinardo@comcast.net

*Down Syndrome Association of West Michigan
Grand Rapids, MI
Phone: 616-956-3488
Email: info@dsawm.org
Website: www.dsawm.org

*Capital Area Down Syndrome Association
Lansing, MI
Phone: 517-333-6655
Email: info@cadsa.org
Website: www.cadsa.org

Upper Peninsula Down Syndrome Association
Marquette, MI
Phone: 906-250-0963
Email: UPDownsyndrome@gmail.com

Down Syndrome Guild of Southeast Michigan
Royal Oak, MI
Phone: 248-556-5341
Email: info@dsgsemi.org
Website: www.dsgsemi.org

Families Exploring Down Syndrome
Sterling Heights, MI
Phone: 586-997-7607
Email: fedsyndrome@aol.com
Website: www.familiesexploringdownsyndrome.org

MINNESOTA

*Down Syndrome Association of Minnesota
St. Paul, MN
Phone: 651-603-0720
Email: kathleen@dsamn.org
Website: www.dsamn.org

MISSISSIPPI

Northeast Mississippi Down Syndrome Society
Saltillo, MS
Email: nemdss@bellsouth.net
Website: www.nemdss.org

MISSOURI

*Down Syndrome Group of the Ozarks
Springfield, MO
Phone: 417-885-9905
Email: info@ozarksdsg.org
Website: www.ozarksdsg.org

*Down Syndrome Association of Greater St. Louis, Inc.
St. Louis, MO
Phone: 314-961-2504
Email: info@dsagsl.org
Website: www.dsagsl.org

*Down Country
Taylor, MO
Phone: 217-617-3568
Email: info@upatdowncountry.com
Website: www.upatdowncountry.com

MONTANA

*Montana Down Syndrome Association
Missoula, MT

NEBRASKA

*Down Syndrome Advocates in Action Nebraska
Lincoln, NE
Phone: 402-413-0199
Email: dsaaofne@gmail.com
Website: www.dsaane.org

*Down Syndrome Association for Families
Lincoln, NE
Phone: 402-421-1399
Email: deb@dsafnebraska.org
Website: www.dsafnebraska.org

Down Syndrome Alliance of the Midlands
Omaha, NE
Phone: 402-991-1800
Email: info@dsamidlands.org
Website: www.dsamidlands.org

NEVADA

*Down Syndrome Organization of S. Nevada
Las Vegas, NV
Phone: 702-648-1990
Email: ceo@dsosn.org
Website: www.dsosn.org

*Down Syndrome Network of Northern Nevada
Reno, NV
Phone: 775-828-5159
Email: dsnnninfo@gmail.com
Website: www.dsnnn.org

NEW HAMPSHIRE

Northern New England Down Syndrome Congress
Concord, NH
Phone: 603-622-6904
Email: maria@nnedsc.org
Website: www.nnedsc.org

NEW JERSEY

*KIIDS
Bellmawr, NJ
Phone: 609-471-7445
Email: contact@kiids.info
Website: www.kiids.info

Jersey Shore Down Syndrome Association
Brick, NJ
Phone: 732-255-5737
Website: jsdsa.org

BUDS “Bringing Up Down Syndrome”
Cherry Hill, NJ
Phone: 856-354-0584
Email: threehens@aol.com

Network 21
E. Brunswick, NJ
Phone: 732-549-8468
Email: rlboucher@hotmail.com
Website: www.dsnetwork21.org

Down Syndrome Association of Central New Jersey
Ewing, NJ
Phone: 866-369-6796
Email: dsacnj@arcmercer.org
Website: www.dsacnj.org

21 Down/ Down Syndrome Awareness Group
Northfield, NJ
Phone: 609-625-8141
Email: info@21down.org
Website: www.21down.org

NEW MEXICO

*Rio Grande Down Syndrome Network
Albuquerque, NM
Phone: 505-382-5061; 505-382-5067
Email: info@rgdsn.org
Website: www.rgdsn.org

*Down Syndrome Foundation of Southeastern New Mexico
Roswell, NM
Phone: 575-622-1099
Email: info@dsfsenm.org
Website: www.dsfsenm.org

NEW YORK

*Down Syndrome Aim High Resource Center, Inc.
Albany, NY
Phone:(518) 738-0020 x 3726
Email: modasra@cfdsny.org
Website:
www.dsahrc.org

*Down Syndrome Association of the Hudson Valley
Gardiner, NY
Phone: 845-226-1630
Email: info@dsahv.org
Website: www.dsahv.org

Arc of Westchester
Hawthorne, NY
Phone: 914-949-9300
Email: info@westchesterarc.org
Website: www.westchesterarc.org

*Down Syndrome Info Network of the Twin Tiers
Horseheads, NY
Phone: 607-734-6151
Email: carc@stny.rr.com
Website: www.downsyndromeintt.org

Down Syndrome Connection of Long Island
Huntington, NY
Phone: 631-427-4395
Email: info@dscli.org
Website: www.dscli.org

*Alexander’s Angels
Jericho, NY
Phone: 516-361-7263
Email: alexandersangels@gmail.com
Website: www.alexandersangels.org

*Down Syndrome Association of Central New York
Manlius, NY
Phone: 315-682-4289
Email: dsaofcny@aol.com
Website: www.dsaofcny.org

*Down Syndrome Parent Support Group of Genesee County
Oakfield, NY
Email: kay@downsyndromegenesee.org
Website: www.downsyndromegenesee.org

Flower City Down Syndrome Network
Rochester, NY
Phone: 585-568-7421
Email: info@fcdsn.com
Website: www.fcdsn.com

Southern Tier Down Syndrome Information Network
Southern Tier, NY
Phone: 607-621-5514
Email: dsin.stny@yahoo.com

*Down Syndrome Parent Group of Western New York
Tonawanda, NY
Phone: 716-832-9334
Email: dspgwny@hotmail.com
Website: www.dspgwny.org

Trisomy 21 Foundation of Northern NY
Watertown, NY
Phone: 315-788-0869

NORTH CAROLINA

Down Syndrome Association of Greater Charlotte
Charlotte, NC
Phone: 704-536-2163
Email: info@dsa-gc.org
Website: www.dsa-gc.org

Down Syndrome Network of Greater Greensboro
Greensboro, NC
Phone: 336-832-6507
Email: nickelhodges@yahoo.com
Website: www.team-up.org

*Down Syndrome Network of Onslow & Carteret Counties
Jacksonville, NC
Phone: 910-719-3321
Email: president@dsnocc.org
Website: www.dsnocc.org

Cumberland County NC Down Syndrome Association
Lillington, NC 27546
Phone: 910- 922-5024
Email: ccncdsa@gmail.com

Piedmont Down Syndrome Support Network
Pfafftown, NC
Phone: 336-480-8871
Email: info.pddsn@gmail.com
Website: www.pdssn.org

*Triangle Down Syndrome Network
Raleigh, NC
Phone: 919-788-3646
Email: tdsnmail@triangledownsyndrome.org
Website: www.triangledownsyndrome.org

NORTH DAKOTA

*Designer Genes of North Dakota
Bismarck, ND
Email: info@designergenesnd.com
Website: www.designergenesnd.com

OHIO

*The Down Syndrome Association of the Valley
Boardman, OH
Phone: 330-726-3728
Email: info@dsav.org
Website: www.dsav.org

*Down Syndrome Association of Greater Cincinnati
Cincinnati, OH
Phone: 513-761-5400
Email: jimh@dsagc.com
Website: www.dsagc.com

Down Syndrome Association of Central Ohio
Columbus, OH
Phone: 614-263-6020
Email: dsaco@dsaco.net
Website: www.dsaco.net

*Miami Valley Down Syndrome Association
Dayton, OH
Phone: 937-222-0744
Email: office@mvdsa.org
Website: www.mvdsa.org

*The Up Side of Downs of Northeast Ohio
Independence, OH
Phone: 216-447-8763
Email: info@usod.org
Website: www.usod.org

Down Syndrome Association of Greater Toledo
Sylvania, OH
Phone: 419-536-4321
Email: information@dsagt.org
Website: www.dsagt.org

*The Ups of Downs
Wellsville, OH
Phone: 330-532-3684
Email: info@theupsofdowns.org
Website: www.theupsofdowns.org

OKLAHOMA

Down Syndrome Association of Central Oklahoma
Oklahoma City, OK
Phone: 405-463-5641
Email: executivedirector@dsaco.org
Website: www.dsaco.org

*Down Syndrome Association of Tulsa, Inc.
Tulsa, OK
Phone: 918-804-3728
Email: info@dsat.org
Website: www.dsat.org

OREGON

Down Syndrome Association of Southern Oregon
Ashland, OR
Phone: 541-776-9805
Email: mail@dsaso.org
Website: www.dsaso.org

Down Syndrome Connections Northwest
Hayden, OR
Phone: 208-755-5079
Email: info@downsyndromeconnections.com
Website: www.downsyndromeconnections.com

PENNSYLVANIA

Down Syndrome Group of Erie County
Erie, PA
Phone: 814-833-2143
Email: lupo12345@aol.com
Website: www.downsyndromeerie.org

Chester Co. Down Syndrome Interest Group
Exton, PA
Phone: 610-889-0291
Email: info@ccdsig.org
Website: www.ccdsig.org

Down Syndrome Association of Pittsburgh
Gibsonia, PA
Website: www.dsapgh.org

Bucks County Down Syndrome Interest Group
Kintnersville, PA
Phone: 215-766-0890
Email: dgsantoro@gmail.com
Website: www.bcdsig.org

Lancaster Down Syndrome Advocates
Lancaster, PA 17575
Phone: 717 478-8537
Email: contact@lancasterdsa.org
Website: lancasterdsa.org

T21 Club of the Delaware Valley
Philadelphia, PA
Phone: 215-990-8730
Email: t21club@comcast.net
Website: www.t21clubofthedelawarevalley.org

Montgomery County Down Syndrome Interest Group of PA
Sassamansville, PA
Phone: 610-754-1483
Email: rosehtownsend@yahoo.com
Website: www.mcdsig.org

Delaware County Down Syndrome Interest Group
Springfield, PA
Phone: 610-544-4025
Email: DELCODSIG@yahoo.com

Centre County Down Syndrome Society
State College, PA
Phone: 814-235-1981
Email: ccdssociety@gmail.com
Website: www.centrecountydownsyndrome.org

*Eastern Pennsylvania Down Syndrome Center
Trexlertown, PA
Phone: 610-402-0184
Website: www.epdsc.net

PUERTO RICO

Mis Amigos De Sindrome de Down, Inc.
Carolina, PR
Phone: 787-791-3249
Email: yolanda@masdpr.net

Madres Innovadoras de Personas con sindrome de Down
Las Piedras, PR
Phone: 787-312-5574
Email: madresinnovadoras@gmail.com
Website: www.madresinnovadoras.blogspot.com

*Fundación Puertorriqueña Síndrome Down
San Juan, PR
Phone: 787-283-8210
Email: fpsd@coqui.net
Website: www.sindromedown.org

RHODE ISLAND

*Down Syndrome Society of Rhode Island
Cranston, RI
Phone: 401-463-5751
Email: coordinator@dssri.org
Website: www.dssri.org

SOUTH CAROLINA

Upside of Downs of Aiken
Aiken, SC
Email: info@aikenupsidedowns.org
Website: www.aikenupsidedowns.org

*Family Connections
Columbia, SC
Phone: 822-578-8750
Email: info@familyconnectionsc.org

Down Syndrome Association of Lowcountry
Mt. Pleasant, SC
Phone: 843-553-3725
Email: dsalowcountry@gmail.com
Website: www.dsalowcountry.org

The Grand Strand Down Syndrome Society
Myrtle Beach, SC
Phone: 843-283-0890
Email: grandstranddss@hotmail.com
Website: http://grandstrandds.org/

SOUTH DAKOTA

*New Directions Down Syndrome Association
Sioux Falls, SD
Phone: 605-610-8026
Email: info@newdirectionsdsa.com
Website: www.newdirectionsdsa.com

TENNESSEE

*Chattanooga Down Syndrome Society
Chattanooga, TN
Email: chattanoogadownsyndromesociety@gmail.com
Website: www.chattanoogadownsyndrome.org

*F.R.I.E.N.D.S.
Johnson City, TN
Phone: 423-946-3734
Email: admin@dsfriends.net
Website: www.dsfriends.net

Down Syndrome Awareness Group of East Tennessee
Knoxville, TN
Phone: 865-202-8867
Email: info@dsagtn.org
Website: www.dsagtn.org

*Down Syndrome Association of Memphis and the Mid-South
Memphis, TN
Phone: 901-547-7588
Email: director@dsamemphis.org
Website: www.dsamemphis.org

*Down Syndrome Association of Middle Tennessee
Nashville, TN
Phone: 615-386-9002
Email: alecia@somethingextra.org
Website: www.somethingextra.org

TEXAS

Panhandle Down Syndrome Guild
Amarillo, TX
Email: panhandledsg@yahoo.com
Website: www.panhandledsg.net

Down Syndrome Association of Central Texas
Austin, TX
Phone: 512-323-0808
Email: info@dsact.com
Website: www.dsact.com

Down By the Border
Brownsville, TX
Phone: 956-544-7727
Email: sergio@downbytheborder.com

Down Syndrome Association of Brazos Valley
College Station, TX
Phone: 979-778-7010
Email: dsabv@yahoo.com
Website:
www.downsyndromeofbcs.com

*Rio Grande Valley Down Syndrome Association
Edinburg, TX
Phone: 956-314-0821
Email: info@rgvdsa.org
Website:www.rgvdsa.org

*Down Syndrome Coalition for El Paso (DSCEP)
El Paso, TX
Phone: 915-241-1040
Email: info@dscep.org
Website:www.dscep.org

*Down Syndrome Partnership of North Texas
Fort Worth, TX
Phone: 817-390-2970
Email: info@dspnt.org
Website: http://dspnt.org/

*Down Syndrome Association of Houston
Houston, TX
Phone: 713-682-7237
Email: executivedirector@dsah.org
Website: www.dsah.org

*Friends of Down Syndrome
Houston, TX
Phone: 281-989-0345
Email: president@friendsofdownsyndrome.org
Website: www.friendsofdownsyndrome.org

*East Texas Down Syndrome Group
Longview, TX
Phone: 903-757-3516
Email: clmack6@cablelynx.com
Website: www.etdsg.org

BUDS – Better Understanding of Down Syndrome
Lubbock, TX
Email: llowe@budsonline.net

*Red River Valley Down Syndrome Society
Paris, TX
Phone: 903-783-1922
Email: info@rrvdss.org
Website: www.redriverdss.org

Down Syndrome Guild of Dallas
Richardson, TX
Phone: 214-267-1374
Email: dsged@sbcglobal.net
Website: www.downsyndromedallas.org

Down Syndrome Association of South Texas
San Antonio, TX
Phone: 210-349-4372
Email: tmauldin@dsastx.org
Website: www.dsastx.org

UTAH

Utah Down Syndrome Foundation
Salt Lake City, UT
Phone: 801-446-1994
Email: info@udsf.org
Website: www.udsf.org

VERMONT

*Champlain Valley Down Syndrome Group
Burlington, VT
Phone: 802-658-7802
Email: lisadenatale@yahoo.com
Website: www.cvdsg.org

VIRGINIA

Down Syndrome Association of Northern Virginia
Falls Church, VA
Phone: 703-621-7129
Website: www.dsanv.org

Down Syndrome Association of Hampton Roads
Norfolk, VA
Phone: 757-466-3696
Email: office@dsahr.org
Website: www.dsahr.org

*Down Syndrome Association of Greater Richmond
Richmond, VA
Phone: 804-796-5141
Email: dsagrinfo@yahoo.com
Website: www.dsagr.com

Down Syndrome Association of Peninsula
Yorktown, VA
Phone: 757-890-3013
Email: dsavp21@yahoo.com
Website: www.pt21.org

WASHINGTON

*Down Syndrome Community
Seattle, WA
Phone: 206-431-9777
Email: info@downsyndromecommunity.org
Website: www.downsyndromecommunity.org

Down Syndrome of Snohomish County
Snohomish County, WA
Phone: 425-263-1039
Email: info@dsasc.org
Website: www.dsasc.org

WISCONSIN

*Down Syndrome Association of Wisconsin – Fox Cities
Appleton, WI
Phone: 920-418-5533
Email: info@dsawfoxcities.org
Website: www.dsawfoxcities.org

*Wisconsin Upside Down
Hartland, WI
Phone: 262-443-8690
Email: info@wiusd.org
Website: www.wiusd.org

*Madison Area Down Syndrome Society
Madison, WI
Phone: 608-692-7653
Email: info@madss.org
Website: www.madss.org

Down Syndrome Association of Wisconsin, Inc.
Milwaukee, WI
Phone: 414-327-3729
Email: info@dsaw.org
Website: www.dsaw.org

WYOMING

Wyoming Down Syndrome Association
Laramie, WY
Phone: 307-742-6641
Website: www.wydsa.org

AUSTRALIA

Down Syndrome NSW
New South Wales, Australia
Email: library@dsansw.org.au
Website: www.dsansw.org.au

NIGERIA

Down Syndrome Foundation of Nigeria
Lagos, Nigeria
Phone: 234-803-228-5545
Website: www.dsanigeria.org

ONTARIO, CANADA

Down Syndrome Association of Toronto
Toronto Ontario, ON
Phone: 416-966-0990
Email: info@dsat.ca
Website: www.dsat.ca

TRINIDAD AND TOBAGO

Down Syndrome Family Network
Valsayn, Trinidad and Tobago
Phone: 868-663-0865
Email: dsfamilynetwork@gmail.com