NDSC News

NDSC E-News ~ December 2020

Mission Moment
with Executive Director David Tolleson

I’ve never been so glad to see a year end! 2020 has been challenging for all of us, but now a new year is just a couple ofDavid Tolleson, NDSC Executive Director weeks away, bringing hope and promise. At the NDSC, we continue to develop and execute programs and resources that meet the changing needs of families like yours. Early in the new year, we will launch our Ages & Stages learning programs with both free and premium options to serve everyone, wherever they are. Soon after, we will host the third discussion on race relations centering on how NDSC and our affiliates can work together to better engage all families in our community.

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NDSC E-News ~ November 2020

 Mission Moment

David Tolleson, NDSC Executive DirectorWhat a great time we had at our inaugural Soiree of Stars gala! It was a wonderful evening, made all the more impactful by the self-advocates who participated. I’m glad that we had the chance to share stories about our work and am especially grateful for those of you who chose to support NDSC’s work with a generous gift. You are appreciated, and you and your family are the reason we do what we do…and are able to do what we do. Thank you for giving! If you missed our virtual gala, you can watch a recording of the event by clicking below.

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RSVP for NDSC’s Event of the Year!

Soiree of Stars - Event of the Year

We hope you will join us as Tim Tebow, Dale Murphy, Coach Dabo Swinney, Ludacris, Rita Harvey, and Neil Berg welcome you to the NDSC Soiree of Stars Virtual Gala.  This event will honor the individuals, organizations, corporations, and 3 amazing Everyday Heroes, self-advocates who have worked in essential positions through the COVID-19 pandemic.

We will also be joined by Felicia Patti from the Netflix hit show Away the cast of Born This Way as we catch up on all that they have been doing in 2020.

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NDSC Soiree of Stars Gala Invite

The National Down Syndrome Congress Soiree of Stars Gala Benefit Committee is proud to invite you to join us on October 22, 2020,  for our inaugural Soiree of Stars Virtual Gala. The Gala will stream live as we will bring together thousands of guests to shine the light on individuals, organizations, and corporations, making a difference in the lives of individuals with Down syndrome.

NDSC is the country’s oldest and largest national organization serving people with Down syndrome. For more than four decades, NDSC has worked tirelessly to foster networks of local and regional groups across the country and globe to connect with and embrace people with Down syndrome, their families, friends, and the professionals who support them. Recent world and national events have pushed us to work harder than ever before.

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NDSC E-News ~ August 2020

Mission Moment

Over the last few months, our staff has been working harder than ever to support your family with the critical informationDavid Tolleson, NDSC Executive Director and advocacy you need. Last week, in conjunction with our national partners, we released the third iteration of our Q&A on COVID-19 and Down syndrome in both English and Spanish. We have increased our virtual learning opportunities to prepare parents for uncertain times – most recently, a webinar to help parents navigate back-to-school options without unintentionally voiding their child’s IDEA rights. We are developing more free webinars, as well as a low-cost Fall Learning Series and virtual Educators Conference. Our Policy Team is working hard on COVID-related issues ranging from financial remedies for self-advocates to educational protections for children with IEPs.

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NDSC E-News ~ July 2020

Mission Moment 
with Executive Director David Tolleson

Wow – what a great month we’ve had! Our Convention From Your Couch was a tremendous success. I’m very thankful to the staff members and volunteers who produced this incredible six-plus week gift to our community. If you missed any (or all) of the workshops or special sessions (like the Awards Ceremony, Talent Show, or Dance) – or if you just want to watch them again – the viewing deadline has been extended through July 12.  Going forward we’re working on additional programming for the summer and fall in both English and Spanish, and we have also begun planning for next year’s NDSC Annual Convention at the J.W. Marriott Desert Ridge Resort & Spa in Phoenix, Arizona!  We hope to see you there.

You can also view a recording of our Town Hall on race relations. It was a terrific conversation starter – one that will continue on July 16,  at 7:00 PM ET. Please join us then to be part of this important discussion.

David Tolleson, NDSC Executive Director

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Extending Convention From Your Couch Through July 12

It is hard to believe that we are in the final days of the NDSC Convention From Your Couch.  Although nothing can replace attending an NDSC Convention in-person, we hope that you have found the virtual event provided information, resources, and connections that are useful for you and your family. 

If you have not attended Convention From Your Couch and would like access to the private channel with nearly 7 weeks of programming, we are extending the viewing channel access through July 12.  The details to gain access are below. 

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NDSC E-News ~ June 2020

Mission Moment 
with Executive Director David Tolleson

Disability rights are civil rights. As an organization that promotes equal opportunity, access and treatment for all people, the NDSC stands with the Black community in rejecting the systemic racism in our society. We also recognize that, as an organization, we have fallen short in our outreach to underserved communities and pledge to do better.

As Martin Luther King, Jr. said, “Injustice anywhere is a threat to justice everywhere.” We all have a role to play, both in rejecting injustice and in finding solutions. To that end, NDSC will host a Town Hall on Race Relations: How do we all do better?, Monday, June 15th, at 7:00 PM ET. I hope you will join us as we listen, learn and explore actions that will make a difference in our organization and beyond.As our community knows, inclusion means breaking down barriers and welcoming everyone. We’re better all together and all together better.

David Tolleson, NDSC Executive Director

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Convention From Your Couch Week 3

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Week 3   May 25 – 31

Each week during Convention From Your Couch we are offering registered attendees 3-4 new workshops in a webinar format.  If you haven’t registered yet, you can still view all the Convention From Your Couch workshop recordings.  Register today and get access to a private viewing channel through June 30!

Starting in June, we will kick-off Youth & Adult workshops, spotlights, and of course, the talent show!  There will also be sessions just for siblings in a virtual Brothers & Sisters Conference, along with the opportunity to attend Sharing Sessions designed for your individual ages and stages.

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