Policy & Advocacy Newsline ~June 2020

Addressing Systemic Racism
In response to the killing of George Floyd and other black individuals in recent weeks and the impact of systemic racism on our society, NDSC released a statement that condemns systemic racism and recognizes that as an organization, we need to do more.  The statement was followed by a video from Executive Director, David Tolleson pledging NDSC’s support of the Black community, stating our commitment to stand by all who are calling for an end to systemic racism in our society, our re-commitment to serve all families that need us, and for our leadership to reflect our community.

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Policy & Advocacy Newsline ~May 2020

Invitation to Attend NDSC Advocacy Training Boot Camp

NDSC’s virtual Convention from Your Couch has begun, but there is still time to register and receive all of the workshop recordings. NDSC’s Policy & Advocacy Team invites you to attend the NDSC Advocacy Training Boot Camp, a free event for all Convention from Your Couch registrants. Aimed at beginner advocates this two-hour LIVE session, to be held on Saturday, June 27, from 1:00 PM ET – 3:00 PM ET will feature presentations from effective self-advocates, parent advocates, and the expert NDSC Policy & Advocacy Team. Learn what advocacy is, the basics of the legislative process, how to engage and build relationships with elected officials, and how to utilize social media in your advocacy efforts.  You will also receive other important resources and tips all from the comfort of your own home. We hope to “see” you there!

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Policy & Advocacy Newsline ~ April 14, 2020

Federal Coronavirus Legislation Update

The worldwide COVID-19 pandemic has upended everyone’s lives in many ways, but it appears that the disability community has been disproportionately impacted. Congress has passed three significant bills to address this crisis, yet many priorities of the disability community have not been adequately addressed. NDSC is working with our partners in the Consortium for Citizens with Disabilities to advocate for these priorities. We have also joined over 200 disability, civil rights, faith-based, and health advocacy organizations led by the American Association for People with Disabilities in sending a letter to Congress outlining our priorities and imploring Congress to include them in the next COVID-19 bill.

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NDSC Statement on Discriminatory Medical Treatment Rationing During COVID-19 Crisis

The National Down Syndrome Congress (NDSC), the country’s oldest national organization serving people with Down syndrome, their families, and the professionals who work with them. NDSC advocates for all people with Down syndrome to be treated equally and works to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome. We realize that during this COVID-19 public health crisis that the need for intensive medical care may exceed the capacity and resources of our healthcare system. We also recognize that medical providers may be forced to make decisions regarding who should receive care and how much care an individual will receive.

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Policy & Advocacy Newsline ~ March 13, 2020

Inclusion of People with Disabilities in COVID-19 Coronavirus Policy and Plans

The COVID-19 coronavirus pandemic not only threatens the health of people with Down syndrome and other disabilities; it threatens their rights and independence across many areas, such as education, independent living, employment, transportation, housing, and even basic day-to-day activities. NDSC, through the Consortium for Citizens with Disabilities (CCD) and our other partnerships and alliances, has been working with legislators on Capitol Hill to make sure that the rights and needs of people with disabilities are included in any legislation addressing the current public health crisis and future crises.

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Policy & Advocacy Newsline ~ February 14, 2020

President’s Budget for FY 2021 Released

President Trump has released his Budget Request for the Fiscal Year 2021 (FY 2021). This is the first step in the complex process of funding the federal government and is indicative of the Administration’s policy priorities. The House and Senate budget committees will review the budget and create their own versions, which will need to be passed by all relevant committees and through both chambers of Congress before becoming law. T

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Policy & Advocacy Newsline ~ January 21, 2020

Election Season is Upon Us: Stay Informed – Stay Engaged

As a 501(c)(3) organization, NDSC does not endorse nor recommend any candidates in any political race. Under the Internal Revenue Code, all section 501(c)(3) organizations are absolutely prohibited from directly or indirectly participating in, or intervening in, any political campaign or endorsing any candidate for elective public office. Our job is to encourage everyone to stay informed and participate in the political process, particularly as it relates to issues impacting the disability community. Below are a few resources that you can reference to learn about policy issues as they pertain to disabilities and engage with other disability community advocates.

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Policy & Advocacy Newsline ~ December 23, 2019

Happy Holidays from the NDSC Policy Team!

As 2019 comes to a close and we welcome in a new decade, we would like to take this opportunity to thank you for your interest in policy and recognition of its importance. Laws that are passed or regulations that are modified or repealed, on the national and state level, will have an impact on our loved ones with Down syndrome and their families for many years to come.

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Policy & Advocacy Newsline ~ November 22, 2019

NDSC Hosts Policy Event in Washington, D.C. in Collaboration with American University Law School

On Monday, November 4, 2019, the NDSC Policy Team; comprised of Heather Sachs, Ricki Sabia, Stephanie Smith Lee, and Lauren Camp Gates in collaboration with American University Washington College of Law, hosted an event entitled “It’s Never Too Early to Prepare: A Discussion of Pathways to Workforce Readiness and Employment.” During this event, attended by nearly 100 people, there were two panel discussions about the laws and policies that successfully prepare students for the transition to competitive integrated employment from early school age through adulthood.

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Policy & Advocacy Newsline ~ October 28, 2019

Let’s Pass the Transformation to Competitive Employment Act!

October is not only Down Syndrome Awareness Month; it is also National Disability Employment Awareness Month. Let’s cap off the month by calling members of Congress to ask them to support real work for real pay for people for disabilities. NDSC is participating in a National Call-In Day on October 30, and we need your help. We need to build more support for this bill and are asking you to send emails and make phone calls to get more cosponsors for the Transformation to Competitive Employment Act (TCEA)

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