NDSC

Policy & Advocacy Newsline ~ December 2020

Newsline bannerD-19

COVID-19 Vaccine Distribution

The U.S. Food and Drug Administration (FDA) has approved both the Pfizer/BioNTech and Moderna COVID-19 vaccinations for immediate, emergency use. Vaccines are now being shipped across the country and given to essential health care workers, with other high-risk individuals such as those in nursing homes to follow.

NDSC has been advocating for all people with intellectual and developmental disabilities (IDD), their caregivers, and support personnel to be given priority in vaccine allocation and ensure that vaccine allocation is done in an equitable, accessible way.

Read More

NDSC E-News ~ December 2020

Mission Moment
with Executive Director David Tolleson

I’ve never been so glad to see a year end! 2020 has been challenging for all of us, but now a new year is just a couple ofDavid Tolleson, NDSC Executive Director weeks away, bringing hope and promise. At the NDSC, we continue to develop and execute programs and resources that meet the changing needs of families like yours. Early in the new year, we will launch our Ages & Stages learning programs with both free and premium options to serve everyone, wherever they are. Soon after, we will host the third discussion on race relations centering on how NDSC and our affiliates can work together to better engage all families in our community.

Read More

Policy & Advocacy Newsline ~ November 2020

Newsline banner

Administration Transition
The presidential election results will not be confirmed until the Electoral College votes in December, and any lawsuits are settled. However, as is traditional, President-elect Joe Biden is quickly naming individuals, to start on January 20, 2021, to serve as senior White House officials, and is moving forward with transition efforts regarding other political appointments and policy priorities.

Read More

NDSC E-News ~ November 2020

 Mission Moment

David Tolleson, NDSC Executive DirectorWhat a great time we had at our inaugural Soiree of Stars gala! It was a wonderful evening, made all the more impactful by the self-advocates who participated. I’m glad that we had the chance to share stories about our work and am especially grateful for those of you who chose to support NDSC’s work with a generous gift. You are appreciated, and you and your family are the reason we do what we do…and are able to do what we do. Thank you for giving! If you missed our virtual gala, you can watch a recording of the event by clicking below.

Read More

Advocacy & Policy Newsline ~ October 2020

Newsline banner

Update on COVID-19 Relief Bills

With the election just weeks away, the Senate is unlikely to pass another broad COVID-19 relief package in the near future. On October 1, the House passed the $2.2 trillion stimulus bill known as HEROES 2.0 Act, which included many of NDSC’s top priorities, including dedicated funding for Medicaid Home and Community Based Services (HCBS). Negotiations around another COVID-19 relief bill have been on and off, but it is unlikely that an additional, comprehensive plan like HEROES 2.0 will to progress in the Senate. It is most likely that any future COVID-19 relief will come as Senate Leader Mitch McConnell (R-KY) pushes for a very limited and targeted smaller “skinny” COVID-19 bill to assist small businesses. Such a “skinny” COVID-19 relief bill would likely not address most priorities of the disability community. To see a comparison of the various proposed COVID-19 relief bills, as they relate to disability priorities, you can visit the Center for Public Representation website.

Read More

RSVP for NDSC’s Event of the Year!

Soiree of Stars - Event of the Year

We hope you will join us as Tim Tebow, Dale Murphy, Coach Dabo Swinney, Ludacris, Rita Harvey, and Neil Berg welcome you to the NDSC Soiree of Stars Virtual Gala.  This event will honor the individuals, organizations, corporations, and 3 amazing Everyday Heroes, self-advocates who have worked in essential positions through the COVID-19 pandemic.

We will also be joined by Felicia Patti from the Netflix hit show Away the cast of Born This Way as we catch up on all that they have been doing in 2020.

Read More

Policy & Advocacy Newsline ~ September 2020

Update on COVID-19 Relief Bills

Congressional negotiations in the Senate on the next major COVID-19 relief package have hit a standstill, but we are hopeful that increased pressure from the White House on the House leadership to move on a COVID-19 bill will reinvigorate the discussions. As the days pass, the chances for a standalone COVID-19 Relief bill grow slimmer.

In May, the House passed its 4th COVID-19 Relief Package and the Health and Economic Recovery Omnibus Emergency Solutions (HEROES) Act (H.R.6800), which contained many positive provisions for people with disabilities, but the Senate has not taken up this bill. In late July, the Senate proposed its own COVID-19 relief package known as the Health, Economic Assistance, Liability Protection, and Schools (HEALS) Act.

Read More

NDSC Soiree of Stars Gala Invite

The National Down Syndrome Congress Soiree of Stars Gala Benefit Committee is proud to invite you to join us on October 22, 2020,  for our inaugural Soiree of Stars Virtual Gala. The Gala will stream live as we will bring together thousands of guests to shine the light on individuals, organizations, and corporations, making a difference in the lives of individuals with Down syndrome.

NDSC is the country’s oldest and largest national organization serving people with Down syndrome. For more than four decades, NDSC has worked tirelessly to foster networks of local and regional groups across the country and globe to connect with and embrace people with Down syndrome, their families, friends, and the professionals who support them. Recent world and national events have pushed us to work harder than ever before.

Read More

Policy & Advocacy Newsline ~ August 2020

Next COVID-19 Relief Package Stalled

Congressional negotiations on the next major COVID-19 relief package have stalled, and we do not expect them to resume until September. Senate Republicans have just released a new “skinny” COVID-19 relief proposal, the Delivering Immediate Relief to America’s Families, Schools and Small Businesses Act, which fails to address the disability community’s most urgent priorities.

Read More

NDSC E-News ~ August 2020

Mission Moment

Over the last few months, our staff has been working harder than ever to support your family with the critical informationDavid Tolleson, NDSC Executive Director and advocacy you need. Last week, in conjunction with our national partners, we released the third iteration of our Q&A on COVID-19 and Down syndrome in both English and Spanish. We have increased our virtual learning opportunities to prepare parents for uncertain times – most recently, a webinar to help parents navigate back-to-school options without unintentionally voiding their child’s IDEA rights. We are developing more free webinars, as well as a low-cost Fall Learning Series and virtual Educators Conference. Our Policy Team is working hard on COVID-related issues ranging from financial remedies for self-advocates to educational protections for children with IEPs.

Read More